diagnosed with LP

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I have been told today that i have LP.I have a large patch on my chest and also on my arms,legs ,ankles and genitals.it is also starting on my back.it seems stange to say that i am relieved to finally know what is causing so much itching.[/b]

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  • Posted

    Dear laguna man

    Sorry to hear of your experience with lichen planus - hope you're feeling better now?

    I work for the NHS and am currently researching skin diseases. I wondered if I could interview you about your experience over the telephone? It shouldn't take longer than 15 mins. It would be a tremendous help.

    I look forward to hearing from you.

    Regards

    Caroline

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  • Posted

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    Regards

    Lin

    Patient Admin

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  • Posted

    Hallo Chimera.

    Would you be in a position to explain why people seem to have stopped using this forum. Could it be that there is another LP forum in existence that is being used. The forum foe LS is so helpful and is being widely used. I would really appreciate your advice.

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  • Posted

    hi Maycovie and others

    , going in for biopsy to confirm lp on thursday, not looking forward to it at all. Not sure why not many seem to use this site for lp like they do the site for ls. agree with Maycovie it would be good if other sufferers of lp would let us know their experiences as a problem shared and all that.... So hard to get the dermovate on the exact place as right on entrance to vagina. any ideas anyone? gbs

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  • Posted

    Hallo Gbs

    You should join the forum UKLP.org.uk. It is a UK lichen Planus group. They are very informed about LP. I joined this group as I know in my heart that I have LP despite the negative result. I also was informed on this site that it is well known in the medical profession that LP is difficult to diagnose even with a biopsy. So now I feel that the whole biopsy deal and pain and worry involved was unnecessary if not bordering on the ridiculous.

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