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Diagnosed with oral lichen planus

Posted , 7 users are following.

ellen57898
ellen57898

just diagnosed with oral lichen planus. I thought I had some gum issues when I was sent to periodontist. Anyone else ls with this ailment?  What treatment are you following? Are there meds for this.  

0 likes, 16 replies

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  • some80778
    some80778 ellen57898

    Posted

    I went gluten free for some assistance on gut health.  I'm also on methotrexate once a week (3 doses of 5 mg  w/in a 24-hour period).  I also try to avoid nightshade vegetables and such.  The best thing is staying on the methotrexate regiment.  

  • billhes
    billhes ellen57898

    Posted

    After many different treatments, the only medication that eased the problem was Betamethasone. I only use this when OLP flares up from time to time. Worth a try.
    • mavis33115
      mavis33115 billhes

      Posted

      i have also been given betamethasone tabs to use when it flares up been rather bad latley not been able to eat much 
    • christine_06421
      christine_06421 mavis33115

      Posted

      How do you take the betamethazone? I was given a liquid to swish and swallow, I was directed on a taper dose 4X a day. This is just an usual condition, I’ve taken prednisone tablets before, but not betamethazone. Can you explain how you take it? Are there any side effects? 
    • christine_06421
      christine_06421

      Posted

      Sorry... unusual condition, it’s certainly not common.
  • linda32054
    linda32054 ellen57898

    Posted

    Yes, it is a real disease! You'll find lots of folks on this forum with the same thing. I've had it for about 3 years. I take Plaquenil and it works pretty good, but pretty lousy side effects. I also took methotrexate for a few months and it worked well also, but again I didn't like the side effects. You can look up the side effects of each of these drugs. The way most people get help is from the dermatologist. (he/she can diagnosis skin disease & your mouth is skin - right)?

    Good luck! 

    • ellen57898
      ellen57898 linda32054

      Posted

      I went to a periodontist for what I thought was gingivitis or something concerning my red swollen gums. The periodontist suspects OLP.  She will do a biopsy in two weeks. In the meantime I am not to use a toothbrush (brush with w-tips) and use my waterpick. Also changed my toothpaste to "Tom's Toothpaste ". Unfortunately, I have been treated for Lichen Planus of the Vulva (yuk). I went to a specialist that only treats diseases of the vulva. I use Elidel cream to keep that in check.  I appreciate all of your comments and suggestions.

    • ellen57898
      ellen57898

      Posted

      That should be Q-tips not W-tips.
    • asha66564
      asha66564 ellen57898

      Posted

      hi i suffering from OLP, of mouth last two years, dr gave me steroids injections, plus Allegra tab, tess , ointment, but it many side effects,  because  acidic foods increases this problem  more, so this should be totally avoided, even Apple increase this more, but now i taking homeopathic treatment, or it helping me a lot.
    • asha66564
      asha66564 christine_06421

      Posted

      hi, if you want to start homopathic, first age decides homeopathic potency, i only know about mouth lichen planus,  if your age above 22, you  have to take 200 potency, of you above 50,  or not heeled 200 potency, you can try, 1000, or 1 M potency, Dr reckweg  co, medicines are unique.  if your mouth cheeks hurted, you should take,  Mercurius, solubilis 1 M, these next three medicines,, Acdium nitricum 200, Borax 200, Arsencium album 200 or 1 M you can choice own,pottency all three medicines, we have to take in cup, little some water, if worse condition you can take 8 drops otherwise 5 -5drops enough day three or four times, but starting takes times to heel if situation worse, you can take allophatic middle, but not leave this, after six months you  will feel you heeling, but you have to find which foods give you, trouble that should totally avoided.  calendula off mother tincture you have to gargled three times, if you have burning sensation, you have to take, after morning tea, sulfur  1 m, 5 drops, , homopathic medciine after eating after one hour we have to take eating things. best of luck, i know how painful this, i taking lycored cap one daily dr advised me three years its vitamin
  • linda32054
    linda32054 ellen57898

    Posted

    Yes, the biopsy is the only true test to tell if you have OLP.

    Let us all know your results.

    Good Luck,

    Linda

    • ellen57898
      ellen57898 linda32054

      Posted

      I have a biopsy scheduled for sept 26.   What should I expect? Pain? Discomfort?  Able to eat?
  • linda32054
    linda32054 ellen57898

    Posted

    ellen5789,

    I guess it just depends on how skilled the doctor is at doing that procedure. My doctor was very good. The biopsy was on the inside of my lower lip. It was a little painful, but they numb up the area first. I could eat almost the same day. The mouth heals very fast. It will be worth it to get an accurate diagnosis. 

    Sending good thoughts your way. smile

  • mavis33115
    mavis33115 ellen57898

    Posted

    i have had oral lichen planus for 2 years now you have to avoid acid and i got a good tooth paste from health shop called kingfisher and visit your dentist regular  

     

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