Diagnosed with PE...frightened & confused

Posted , 5 users are following.

I've just been diagnosed with two pulmonary embolisms and I'm petrified! I'm 26 weeks pregnant and I'm scared for myself & more importantly my unborn baby.

My consultant has out me on injections on 80mg of Clexane morning & night. I understand that this will thin my blood but not cure the PEs. What I want to know is can these still kill me while I'm on the treatment or will they disperse in time, hopefully before I go in for my section.

Many thanks

0 likes, 10 replies

10 Replies

  • Posted

    They found them according to my interventionalist the lungs were the safest place for them to land. They aren't going any farther. It isn't going to be all sunny days and rainbows it will be painful rough and scared but you will slowly heal in time. Stay on your medication and follow all Drs orders and stay as calm as possible come here for support. Love.

    • Posted

      Thank you for your reply & reassurance, its very much appreciated. Can you tell me also, can anymore develope or is this not possible while on Clexane?

  • Posted

    Wow lucky they found them. Mine were diagnosed in august. Still very breathless but take each day at a time. Try to keep positive. Stay calm Must be hard as you are pregnant too. But just listen to your doctor. good luck we are all here for you.xx
    • Posted

      Thank you so much! I am really frightened if I'm honest but I have a 2 yr old also so need to be brave for him 🙂

  • Posted

    Hi Evey,

    Sorry to hear of your problems, but things should settle down now you are on the injections. My daughter in law was on the same all through her pregnancy and all turned out fine.  You are right that the Clexane won't cure the PEs, its job is to prevent more, which it should do well. No, the clots you have won't kill you and the Clexane will stop any more. Your body will dissolve any remnants over time - probably a few weeks.  

    The worst effects of your PEs should be behind you now, but if you do have any concerns, I am sure your doctor/specialist would be happy to see you.

    All the best Peter

    • Posted

      Thank you so much for your reply, I'm extremely grateful! I'm seeing specialist this Friday so this will put my mind at rest more hopefully. Thanks again.

    • Posted

      What I say to everyone who is going to their appointment with the specialist is to make a list of questions to take with you.....because you mind will go blank when you get there.

      Also, I believe anxiety is a side effect of the PE - most seem to get it, so don't be afraid to ask for help and/for someone to keep you company.....it helps.

      All the best Peter

  • Posted

    Hi Evey

    It is great that they have been found and your are on the right treatment. Try to stay positive and be calm, I know that is so easily said but so very hard to do!

    I was diagnosed with large PE in both lungs in November and I take each day as it comes, I try and do a little and go for a short walk and try and think positive.

    It is very true what is said about anxiety, I am suffering with it and you do have to take one day at a time, things will get better.  Listen to your body and consultants.

    Take care x

    • Posted

      I was on anxiety meds before the PE thank goodness, they were working because this will blow your mind without a friend to talk to or a med to calm the fears. It helps both ways. It can be such a dangerous condition but I think once they land in the lungs it's just recovery we need to be concerned about.

      It helps having friends here.

    • Posted

      Hi Windy

      I think that I may need some meds, I am on a wait list to see a therapist but this can take months.

      It is very true that it does blow your mind, and is constantly in my thoughts the fears etc.

      It is a massive hep having friends to talk to x

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