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Diagnosed with prostate cancer and worried!!!

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John-Can
John-Can

Dear all,

I was diagnosed with prostate cancer a few days ago and my urologist says, after introducing the results of the biopsy, that I need treatment. My last PSA was 5.76 and out of 12 cores, I have 6 cancerous cores. All are grade T2 and their Gleason scale score is 3+3=6. My urologist says all these cores are located on the right lobe of my prostate gland and they are confined to prostate gland. I requested a CT scan, MRI scan and bone scan to make sure that there is no spread, but the doctor says there is no need for MRI and bone scan and only CT scan is needed. I am extremely worried and confused because I don’t know what to choose for treatment, radical prostatectomy, radiotherapy (external beam, brachytherapy) or cryotherapy. Please help me, I want to hear your opinions. Any comment or advice will be highly appreciated.

0 likes, 25 replies

25 Replies

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  • Davey22
    Davey22 John-Can

    Posted

    Great choice John-Can. Get it removed and done with. I wish that I made that same choice the first time. I elected for HIFU.Then, 3 years later, I had it removed. I'm doing ok. No incontinence but no interest in sex either. If you can live with that, go for it. Good luck. Pick out the best dr. you can find. I choose Dr. Vipul Patel and I'm happy with the outcome.

  • Davey22
    Davey22 John-Can

    Posted

    Another thing that I should have mentioned. My surgery was only 3 months ago. With no incontinence issues now. That's great with me. As far as sexual issues, that may take some time to get better. At 65 years old, I really have better interest in life. Stick to your plan John, just pick out an experienced robotic surgeon.

    • John-Can
      John-Can Davey22

      Posted

      Hi all,

      Here is my update:

      After researching for around 5 months, I decided to go with surgery. The surgery was done on September 5, my major problem now is nausea and acidity which is causing a lot of gas in my stomach. I’m throwing up everything I eat. Doctors gave me medications for this problem, but so far nothing helped. I don’t know how long this will last. Is this normal? Your advice is greatly appreciated.

    • richard98806
      richard98806 John-Can

      Posted

      Not sure if it is normal, but is not anything that I experienced. Every

      person is different. Make sure your doctors are on top of it.

    • Pepasan
      Pepasan richard98806

      Posted

      Your story makes me glad I kept the 3+3 cancer and the prostate and just stayed with active surveillance!
  • John-Can
    John-Can

    Posted

    Dear All,

    Sorry, I have been unable to post as my situation was so bad. I stayed 6 day in hospital after surgery unable to eat anything because of nausea and vomiting. I was just living on IV feeding. Day 7, I could eat a little bit without having nausea and throwing up my stomach contents. I was sent home on day 8 and yesterday my catheter was removed.

    My problem is now total incontinence. That is 100% incontinence. It looks that my bladder got used to the catheter mechanism and is refusing to keep urine. Is this normal? What can I do to eliminate of at least reduce this complete incontinence?

    Your valuable advice is greatly appreciated.

    • richard98806
      richard98806 John-Can

      Posted

      I have no experience with how your post op played out. I would be asking lots of questions with the expectation of some answers. Incontinence is normal but I assume there should be some control even if it is minor. You should be doing your kegel exercises. As an FYI, my catheter was removed day 10.
    • david41094
      david41094 John-Can

      Posted

      I rarely post these days because I opted for RT following 4+4 and have never looked back but I see FAR too many posts like this. As Pepesan states below - if you have only 3+3 I would seriously consider AS.

      Hope your condition improves. 

  • John-Can
    John-Can

    Posted

    Dear forum members,

    I thank everybody who tried to help me or comfort me and would like to post my update.

    My incontinence started to improve yesterday and it is now around 50%. I’m still taking pain killer medications like Oxycodone and Tylenol because I still feel pain. I hope to improve daily over the next few weeks and wish good luck to everybody.

    John

  • barney34567
    barney34567 John-Can

    Posted

    Your worry is that the PCa will not stay at G6 and hence you want treatment,

    What about having 6 mthly PSA tests and scans to see if there is any change.

    By doing so you will most likely delay having life altering treatment to the time when you NEED it and not the time when you THINK you NEED it.

    Trust me: the changes that take place resulting from the treatments are significant and you should not rush.

    Speaking as a 52 yo who had RARP, RT, ADT and now even more meds.

    Then again I had a G9.

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