Diagnosed with TN

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I was diagnosed with tn in Sept 2014. Dr started me on Tegretol bit was allergic to it. I am now Gabapentin 400mg which I take 2 pills three times a day, Dilantin 100mg which I take 2 pills in the morning , one in the afternoon and 2 at night and lyrica75mg which I take 3x a day. I've had several nerve blocks and the pain still cone and go. Can someone help me with this pain. I'm tired of being in pain. (HELP)

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  • Posted

    Hi Mzdavis

    Welcome to the forum.

    Im sorry to hear you're in so much pain and I sympathise with you. Has your Dr referred you to a Neurologist and for an MRI scan? If not ask to be referred.

    You will find a lot of patients on here all have different stories with their TN and there's good advice too on what you can do that may help your pain. One patient suggested taking daily cod liver oil capsules and since she has taken it she no longer has TN. I'm already taking it. But as I have a history of 9months with TN pain and then 9 months remission I won't know if the Cod liver oil is a success for me until beginning of March 2016.

    Let us know how you get on and please do keep in touch. 

    Kind regards



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    • Posted

      Hi mzdavis,

      When you go to see your surgeon ask him if you have to take so many different medication. You may be able to take one or the other just by increasing the dosage. I had side effects from Gabapentine so I was prescribed Pregablin on a low dosage at first and gradually increased to the maximum and I was fine. It can take two or three weeks to settle into the bloodstream, although I know everyone is different. Even though I was still in pain because of the low dosage I had to just take paracetamol. My last TN bout wasn't a happy one. I'm lucky at the moment as I'm in remission.

      Let us know how you get on and good luck.

      Kind regards


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