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I was diagnosed with Tolosa Hunt syndrome in August this year after a 10 day spell in hospital. All the usual symptoms: chronic gnawing headache on left side behind my eye and across temples, diplopia in my left eye, loss of sensation in forehead on left. An MRI scan showed inflammation of the cavernous sinus on the left side.
I was prescribed prednisolone, which seemed to easy the pain somewhat, enabling me to sleep, but now I have come to the end of the course of drugs and the headache has returned with force.
I'm due to be having a rescan shortly to see if there has been any effect on the inflammation.
I'd be interested to hear from anybody who has been through this or knows any more than is posted on this thread. Do people ever see a complete recovery from THS and if so, does the damage to the eye movement caused by 6th nerve lesion generally recover?
all my best wishes to anyone else out there going through this...
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