Diagnosed with type 2 brittle asthma, but currently struggling with severe chronic symptoms
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I was diagnosed with type 2 brittle asthma about 20+ years ago. I take a cocktail of meds to control my asthma, however over the last few months following a very severe attack, I have had repeated chest infections and I am struggling to maintain a stable PF currently 250 and below (normally 450+) and I am experiencing frequent severe exacebations 4 ITU admissions in the last 4 months.I can't exercise even walking up a flight of stairs is a struggle. I am feeling seriously miserable and isolated. Is there anyone out there that knows
what I am going through that can advise. It is seriously "doing my head in!"
0 likes, 6 replies
Breathe5
Posted
Southernbelle Breathe5
Posted
liza21 dinah14906
Posted
gloria76676 dinah14906
Posted
I have had asthma all my life I am 71. When I started out my journey there was not much out there for asthma. In 1999 I was so sick then my dr gave me a phemonia vac and I did not make any antibodies so he knew I was immune deficient.
gloria76676 dinah14906
Posted
Since 2000 I have been on Qvar and Serevent and Theo 24 and now it seems that my body may be getting used to this treatment because I am experiencing more low peak flows and my chect tightens. Just know all of you that you are not alone in your fight. Only someone who has asthma knows. From USA
john39866 dinah14906
Posted
It sounds like you are either in contact with a source of infections (usually kids! or old people, even animals) or else your immune sytem is so weakened that you can't fight even mild infections.
I am 68 had asthma since 16 and it is now morphing into COPD. I have taken decent quality multivitamins and minerals over the years, and organic yoghourt especially during and after a chest infection. If nothing else my nails are in beautiful shape and I have all my hair... . My peak flow averages 230, and the surgery tells me i have the lungs of a 90 year old.
If I could find out whose I'd give 'em back...
Too many courses of antibiotics are not good for you, nor Prednisolone. So perhaps you need to find out what foods, fruits, vits will help build up your resistance?
I have my own supply of both for emergencies, but I try to avoid using the antibiotics and use the preds minimally. i.e. I will start with one and see how it goes. If I get up to 2x2mg twice a day I go to see the doctor.
I also think knowing the worst triggers for you personally and taking precautions to avoid them helps. I use a decent mask when doing anything dusty, and we have a positive pressure ventilation system fitted in our bungalow. This draws in air from the loft space and filters it through washable filters and forces air OUT of the living space rather than drawing it IN through open windows.
Not only does it eliminate condensation or mould, it is great during times when there's a lot of dust or pollen around because you can shut all the windows and doors (taking care not to lock family members outside) and breathe clean, filtered fresh air...
Costs about £400 fitted guaranteed five years.
I would say that avoiding triggers does less damage to your airways (inflammation) and means that less medication is needed to get you back to normal.
Whatever that is for you.