Diagnosed with Vestibular Migraine

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Hello! So I'm 19 years old and it is my first time writing in this group.  In August I had my first vertigo attack when moving to Germany on my own. It lasted 3 weeks and doctors didn't find anything. I was fine until January 2018 when again I started to get dizzy and experienced auras which triggered panick attacks. Since then the dizziness was constant and I was told it was all anxiety. I came back to my home to get a proper diagnosis since doctors in Germany weren't helping, because I took anti anxiety meds and they calmed panick attacks but not the dizziness. Finally I went to a psychiatrist and a neurologist. I have both Panic Disorder and yesterday I got diagnosed Vestibular Migraine. I'm taking Paxil to treat the anxiety which the doctor says might help also migraines, and now I got prescribed Flunarizine 5mg as well as other tablets that are just for 3 days. I'm relieved that I finally have an answer, but at the same time scared. Sometimes google can be the worse enemy because there are all bad stories out there. I just wanted to know is it possible to recover from this dizziness? Does it get better? I don't want it to ruin my opportunities in life, I love to travel, I love to workout, and I don't want this to ruin it. So far I can still workout and everything, I haven't lost my balance but I just wanted some answers.

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  • Posted

    Hi,

    I have been suffering from vestibular migraines for three years now. It took a long time to get a diagnostic but at least now I have one I know what I am dealing with. I to have anxiety and the condition made it alot worse. I used to get really accute vertigo attacks but I learnt through doing CBT counseling that what was happening was when I started to feel of balance I was giving myself a panic attack which then made it all much worse. Since I have managed to deal with that it has really helped me as I don't have really bad sudden attacks anymore. But unfortunately I am sturrlig to find a medication that works for me I have tried alot and it has turned my life upside down but if you can find the right medication and learn what triggers it (I have found this hard) you will get there.

    Have you had any meds and have you thought about what could be triggering it, what do you feel about the diagnosis. It took me a long time to accept it was migraine realtors as it isn't what I understand migraines to be and I felt the word migraine wasn't strong enough for how bad it is.

    I really understand your feelings.

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  • Posted

    Sorry to babble on,I just reread your post and can see you have been on medication. If what you are in isn't working there is alot more. I really have tried alot so I can give advise. I am currently on medicine that is primarily for epilepsy but it is really helping.

    Also do a diary, it seems silly but will help u Identify some triggers. I having found all mine yet but I know my mine ones are....if I don't stick to a sleep pattern, stress, coffee and weather changers.

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  • Posted

    last month my month i suddenly started getting very dizzy pain in left ear . i had to go to the hospital and see an out of hours gp . she said my bp was fine and i had no ear infection. she told me to take paracetamol as she did not know what was wrong with me  as i was too complex a case. i had to wait a week to see my neurologist and he said all the symptoms i had was because my chronic daily migraines had just gone through the roof probably he said due to the sudden death of my beloved 95 year old mother in january (i was her carer ) and my brother in law having to go on the heart transplant list.he has pet me on zonisamide 50 mg daily upping every 2 weeks till i am taking 200mgs. i have suffered from severe anxiety and depression all my life.  (on meds for that) i also take naproxen when migraines are really bad , also osteoarthritis in my knees and feet. it took about 3 weeks for the dizziness to clear up. my neuro thinks when aimovig  (cgrp) is licensed here in ireland it will be the answer to my prayers. i am 64 years old now and in pain everyday. foods are not a trigger for me. hope this helps you.
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    • Posted

      Hi I am also on zonisamide, it isn't very well known yet. Not even my GP knows about the drug I can only have it as.it is prescribed by my specialist.

      How do you get on with it???

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    • Posted

      Hi i am only taking zonisamide  3 weeks. it has made no difference to my migraines but i feel very tired and have swollen ankles and feet. next week i go up to 150mgs daily and i have to have a blood test for kidney function as it can cause kidney stones. my neuro told me to drink as much as i can.
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  • Posted

    Vestibular migraine is the pits. I have had numerous episodes myself both with and without headache. Yes, it can go away. Start addressing the issues that are causing you anxiety. Don't let fear get control of your thinking. 

    Think positive thoughts. Read positive material. Also, watch the salt intake. The body needs a balance of sodium and potassium. When you start to feel dizzy, eat a banana and drink lots of water. Stay hydrated. The body is out of balance in more ways than one. Examine your diet for triggers. Get enough sleep and try relaxation techniques, yoga, meditation, etc. The body and mind are inter-connected so we have to keep them both healthy. Keep us posted and take good care. 

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