1. Community
  2. Skin and nails
  3. Hidradenitis Suppurativa

Diagnosied with HS finally

Posted , 3 users are following.

whoshunny15289
whoshunny15289

so yesterday I got to see a specialist of all things an infectious disease specialist. He spent a lot of time with me asked questions listened to me and then examined me. He agreed with and said it is HS. I felt so sad and disappointed on one had and so relieved on the other hand. He said he has worked with other paients with HS and as there are no cures he believes we can control it at some level. So he started me on 14 days of antibiotics and said he doesn't believe in over using antibiotics because they can cause other issues like building resistance to their effectiveness. He asked me if I had questions and or concerns and said he wants to see me monthly. After the 14 days of antibiotics he said we will discuss other options but he wants to get my infection under control. I cried and he listened to me it was a great feeling to be validated by a doctor. For the first time. I am scared but glad at the same time. I talked to him about nightshades and gluten and food triggers he said he's not heard of those helping. Or hurting. But that he will read up on it smile I'm hopeful and going to do my best to stay positive and motivated to find a way to live with HS. Whoshunny

0 likes, 5 replies

5 Replies

  • atticus2169
    atticus2169 whoshunny15289

    Posted

    Sorry to hear about your diagnosis, but very glad to hear you've found a doctor who's willing to listen and work with you. Can't tell you how rare that is in the HS world.

    There are a lot of things you can try, and identifying any possible food trigger should definitely be the first step. Starting a Turmeric and Zinc regimen has also helped a lot of people, I personally had mixed results, but a lot of HSers swear by it. Turmeric is a natural anti-inflammatory, so it'll basically do the same thing the antibiotic will do, minus the over-powered kill every bacteria in your body deal, and the zinc will help support your immune system and keep it doing what it's supposed to be doing. At the very least it won't hurt you.

    Don't get discouraged, just because there is no cure doesn't mean you can't put this sucker into remission. Keep trying until you find something that works, don't give up.

    Good luck!

    • stephanie15666
      stephanie15666 atticus2169

      Posted

      Good morning, by chance do you know how many oz of Turmeric and Zinc, I.should try?

    • atticus2169
      atticus2169 stephanie15666

      Posted

      It takes awhile to find a happy medium dosage wise. Most people will take between 800 to 1200 mg of turmeric per day and between 25 and 50mg of zinc. I'd recommend starting at a low dosage of both and working from there. It can take about 6-12 weeks to see results though, so don't get discouraged if you don't see anything right away. Zinc can upset your stomach, so the stick to the lowest dosage that works for you and make sure you take it with food. Also, turmeric absorbs best when taken with protein, so take it with a glass of milk or make sure you're eating it with meat or some other form of protein.

      You can buy zinc just about any drugstore and the absorbancy rate won't change too drastically, but the turmeric you definitely want to buy either from an authentic indian/east asian store or you can buy pre-made capsules, you can get them off amazon.

    • atticus2169
      atticus2169

      Posted

      Also, I should mention that Turmeric is a blood-thinner, so make sure you tell your doctor you're taking it. If you end up needing surgery at some point, you will need to stop taking it probably a week or so in advance of the operation.
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.