Posted , 9 users are following.
Recently I was adviced to have both endoscopy and manometry doen in one shot, manometry followed by endoscopy. I was just wondering if anyone has experienced that and is there anything you would suggest?
0 likes, 31 replies
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Tassy d69818
Posted
When I was first diagnosed the did the edoscopy and found nothing, so then suggested the manometry for another day. But all my follow-up visits over the years, have done them both on the same day. Always the manometry first as you need to be alert and swallow on command. Then the edoscopy later as you are lightly sedated for that. Not the most pleasant way to spend a day, but really not so bad. No real pain, just unpleasant and uncomfortable at a few points. Good luck with your tests.
DJ-RN Tassy
Posted
Ty 2sassy! That makes total sense. I know I had to be awake to swallow the normal
saline they give you. Perhaps they're different types of manometry testing. I know they do them for pressure readings of the LES and check the ph in acidic fluids. I'll ask my GI doc Weds about it. Stay Well and ty for sharing.
d69818 Tassy
Posted
Thanks for letting me know Tassy. It's good to know this has been done before. I've been just worried about going into egd with something in my stomach after manometry. The doctors know better in this case, I guess :-)
danielle59076 d69818
Posted
It's just so important to be an advocate for yourself. Do as much research as possible. Ask a million questions. I love my UofM and Henry Ford Drs. They all approached me with "what do you know already? What have you heard? " just so they know they aren't beating a dead horse and they would be Bc I've read everything possible about this disease. Educating yourself is key. I would maybe ask if they think you coming out of sedation will effect the manometry and you want to make sure you are getting the best possible reading
DJ-RN danielle59076
Posted
I couldn't agree with you more Danielle. We MUST take charge of our own health and educate and learn everything about this disease backwards and forward. Like I've said before, if you think that your PCP is going to do a better job at it than you, as a nurse I can tell you would be mistaken. I've seen two different surgeons and both wanted to do a different Fundoplication on me. I see a new GI Dr. Weds and I hope that he will be able to help me decide which type I NEED to have and NOT one that a particular surgeon specializes in. I know that our teaching institution does not do manometry and EGD's one right after another. But, I'm going to ask this new GI doc I've been trying to get into see what he thinks about it and I will post it. I was just saying that I personally would not want both performed right after the other. It may be fine. I'm not certain and I didn't mean to mislead anyone. It's just my personal preferences. It sounds like you have great Drs. But, no one is going to cut on me and change my anatomical structure for life unless I feel comfortable with it. Please, never be afraid to ask your Dr. all the questions you have. If you are not satisfied with them that is more the reason to be getting a second opinion anyway.
Ty so much for sharing. 😊
d69818 danielle59076
Posted
Thanks danielle, I'll do as you said, and this forum is really helping me with you all speaking out of your own experience. As for my incoming test, the order will be mano first then egd so only thing that would be a bit worrysome is not to be able go into egd with an empty stomach and that might create a risk for aspiration. I'll ask about it tomorrow when I'm getting the second opinion.
DJ-RN d69818
Posted
Ds9818,
I'm sorry I responded to some of your posts. I got confused and thought they were posted on my site. My bad. I didn't mean to speak out of turn.
d69818 DJ-RN
Posted
Dear DWJRN,
I'm actually so grateful for you taking time to offering your precious insights and experiences on this disease, thank you so very much. I've been busy whole day today so haven't been able to read through all the responses yet. And I'll read it all in preparing to go in for a second opinion tomorrow.
DJ-RN d69818
Posted
I wish you all the luck in the world. I see a new GI specialist Weds myself. Hopefully get some answers. Let's us know how your appt goes.
DWJ
d69818 DJ-RN
Posted
You too, thanks. I'm sorry for all you went through with a wrong dignosis, hope your new GI is a well versed one on this. Your attitude is very empowering. I'll keep you'll posted for sure.
DJ-RN d69818
Posted
Thank you D69! I, like yourself, just want to learn and share our experiences with everyone. If it helps but one person, the time and effort is well worth it. There are many different forms of Alchalasia, and not everyone is the same. Just because one person has had a bad experience with something someone else may be having done doesn't mean by any stretch of the imagination that you too want do well. We all respond differently. But I can't stress enough the importance of doing your homework, search the web, listen to others, do much research and most of all make sure that you are comfortable with what your Dr. and/or surgeon proposes for you. Ask questions and if you're not satisfied with them or don't understand, ask again. Moreover, ALWAYS get a 2nd or 3rd opinion. NEVER go through a radical surgery that will forever change your anatomical structure within until you are totally at ease with the surgeon and yourself.
DWJRN
Guest d69818
Posted
I'm following this discussion. I have started my own discussion if you have time to read it it goes into depth whats been happening.
I'm now booked in for a manometry test on the 11th May 9am and I am NOT looking forward to it at all. The thought of something going up my nose and then inside me horrifies me. I'm getting into a panic just thinking about it. Just had cataract surgery done and was so calm about that, but this is just a different ball game althogether. I know its got to be done so I am just going to have to bear it.
I've had two endoscopies done with no sedation and having read post on here it seems that alot of you have had some sort of sedation for it. The first one was OK once the scope was in, the second one was awful, really awful and I must keep telling myself that the manometry test can't be any worse than that.
I think the anticipation of having it done, will be worse than actually having it done.
I've had all the information from the hospital and it states that some people faint whilst the tube is being inserted. Have found out since that there is a nerve that runs down the back of your nose that if it is touched can make your blood pressure go down and then you faint. Also that you can have a nose bleed. Any of this happened to anyone?
It also goes on to say that I may have to go home with a tube still in me (I think they take the first one out and then put another one in), this is attached to a monitor which I will have on a belt. I have to keep a food diary and if I get any problems with food going down, I have to press a button and it will record the pressure at that time. This is a 24 hour test. I will be told how to take it out if I can't tolerate it but they like you to keep in in for the 24 hours, returning back to the hospital the following day.
My biggest worry is that because my problem happens on and off and if I am having a good period the test will show nothing at all. Have said to my husband that if I do have to have the 24 hour test I am going to eat things that I know I get problems with. Toast, dry bread and meat. I have googled the symptons and read lots of discussions on here and everything points to achalasia. When Im having a good period I think I can cope with this, but when its bad I know its not normal and I just want to know what it is. So I know I've got to have it done.
Thanks for reading
Littlepea