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In Oct.2009 my con/dermatologist diagnosed LS after inspection of my vulva. She advised I see con/gynaecologist to have biopsies carried out.
In Feb 2010 con/gyn carried out 1 vaginal and two vulval biopsies under general anesthetic.
Mar 2010 was informed by con/gyn that results of biopsies were all negative. No cancer. No LP. No LS.
She claims I have vulvodynia and is to refer me to a pain management clinic.
I would be greatly interested if any of you experienced this. I have read about False Negative reports and said this to the con/gyn but she insisted that she had full confidence in the results. Any advice would be really appreciated.
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What symtoms are you getting?
I am on tablets for nerve pain which help me get some sleep (Pregablin) and the dermotologist has asked me to wait a month or so to see if the burning, bladder pains settles once I have the eczema under control. If not I also have to go and see a consultant who deals with pain. Do you think anything set yours off?
I was diagnosed 2 years ago with vulvadynia and psoriosis was treated with oestrogen cream then steroid cream, then diagnosed with l.s. and obviously now awaiting results for lp. The treatments i had are the same so i would advise you to keep treating as you have been. the spray that Zoe talks about on the comyskin message board sounds a bit like the instagel that i've been given to use. Whether it's ls or not it's obviously a vulva problem and needs ongoing investigation on a regular basis so don't be fobbed off and insist you are seen by a gynae/derm consultant at least 6 monthly. Take care.
Lets try to get the facts together.
Who diagnosed vulvadynia+psoriosis. What were the symptoms.
Who diagnosed LS. What were symptoms. Did a biopsy confirm LS.
Who diagnosed LP. What were symptoms. Will a biopsy confirm LP.
Did the oestrogen cream help the vuval tissue to repair.
You know my history. I have no itch. Sore spot on introitos.
Oestrogen cream irritated my vulva.
Now take Vagifem internally. This repairs tissue but does not burn vulva
Breast cancer risk minimal as very little absorbed into bloodstream after the first few weeks.
I agree thoroughly with all vulval problems must be observed professionally. Your message very helpful. Thanks gbs. How is your stitch. Have you a lot of pain. Hope to hear from you. may
G.p. perscribed oestrogen cream for sore/itchy /sometimes few very itchy bumps on vulva approx 3 years ago.
Then low dose steroid cream.
2 years ago - sex very painful, worsened over time.
Referred to gyanae consultant who diagnosed psoriosis / vulvadynia, given higher dose steroid (dermovate)
Last year - biopsy diagnosed ls same gynae/dermatologist (lucky enough to have both in same clinic) consultant
January this year - visually diagnosed with lp awaiting result of biopsy.
Still using dermovate couple of times a week (not at mo obviously)
Stitches sorer at mo, tightening. ls attacking as no steroid used!!!!!vicious circle. Read my post on **** message board.
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One of my biopsies was from the vagina and this proved to be the most bothersome. I soaked in warm water with lavender oil morning and evening. I also had to rest a lot to allow it to heal. To be honest it was too painful to walk or stand too long. So be sure to rest gbs. Thank you for the info. We seem to be waiting for results eternally!!!!! May
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