Posted , 3 users are following.
Hi I'm worried about my son could he have hemcromatosis? He has been in a lot of pain over the last 2 years he has a diagnosis of widespread pain. On 2 occasions his serum ferritin levels a have come back abnormal once a year ago and now more recently he has also been given vita and folic acid by gp.
1 like, 5 replies
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bruce97898 eileen_9999
Posted
It's hard to know from the limited information. It's possible but he'd need a test to be sure. My pain was mainly in my shoulders and hands. Joint pain is a HH symptom but is not unique to that condition.
Barb1028 eileen_9999
Posted
eileen_9999 Barb1028
Posted
Hi sorry his ferriten has been around 495 range 30-330 I know it's not hugely high but just wondering could this be haemochromatosis. He has also been given folic acid to take vit do and b12 on and off over the the last 2 years
Barb1028 eileen_9999
Posted
I think my ferritin started at about that.. but I had no symptoms. My dr did the genetic test and both parents carried the gene. I have now been going for phlebotomy's for over a year, my ferritin is now 10..but there are other numbers they look at.
Have the doctors do more tests, in fact take him to a hemothologist, that's who I go to.
eileen_9999 Barb1028
Posted