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Diagnosis help needed

Posted , 5 users are following.

emma01302
emma01302

Could any one please help with some advice please.

I am 38 and have had pain in my joint pretty much all my life (told it was growing pains)

I have had investigations for RA in the past as I test positive for rheumatoid factor and CRP and ESR are both raised.

I have recently had back MRI and wondered is they show signs of arthritis:

Degenerative disc disease in cervical spine

Fatty marrow deposits in thoracic spine

Thickening of facet joint and ligaments in lumber spine and 3 bulging discs.

I also have very painful heels and swollen Achilles.

Just wanting advice as seen of being fobbed off. Does this sound like any form of arthritis or just normal ageing?

Emma

0 likes, 13 replies

13 Replies

  • garyjm3617
    garyjm3617 emma01302

    Posted

    Emma the cervical issues sound like osteoarthritis, which I have. Fatty marrow haven't dealt with. Good Dr, Arthritis, should diagnose. I've had Radiologists where they have be steered in right direction. You ever been told feet could have Gout? Form of arthritis easily checked. Good luck, with pos RF and elevated inflammation something going on. Best

    • emma01302
      emma01302 garyjm3617

      Posted

      Hi no not been told I have gout- I thought it was just your big toe affected by that? Mine is my heel and Achilles that's affected. I thought blood showed something which is why I don't want to be fobbed off any more. Am going to ask for another referral to rheumatology I think.

  • ted07101
    ted07101 emma01302

    Posted

    What is your reumatologist say about your condition, AS ? What is the cause of inflammation? He or she tell you ? Ask the doctor, autoimmune disorders I have that start 24 years old now I am 61 2012 I start use ENBREL 50 it works also I use sulphazaline 500 plus Celebrex 100 it is no possible to combat this with one medication, I suspect you have HLAB27 gene or what is known as ankylosing spondylitis immune attack the body ask your doctor because your doctor can tell you what exact you have , if ESR CRP is high you have inflammation blood disorder the white cells of the blood attack wrong your body TNF blockers is the answer sparingly plus I use sulphazaline direct release and Celebrex if you leave it no treated you feel the harm what he do to you there is no cure from this Control is and ask your doctor please my advise to you 
    • emma01302
      emma01302 ted07101

      Posted

      Thank you for replying. I was discharged for rheumatologist prior to having my back MRI. But they just said I had hypermobility and fibromyalgia. I have gabapentin and amitriptyline prescribed. I just don't want to be fobbed off and then get progressively worse and not on correct treatment. I feel my symptoms fit AS too.

    • ted07101
      ted07101 emma01302

      Posted

      I just injeythw ENBREL 50 i use it every two months no weekly , but regular I use sulphazaline 500 direct release with Celebrex 100 it works , tryptophol is for depressing disorders what have to do with the autoimmune disorders ? How you feel in the Bowel ? IBS exiSts ? Lower back pain ? Up thorasic ? AS is mean the spine is fussed lik bamboo spine , you feel it within you if the blood attack you ? It is the most complex disorder I have seen consentyx is one popular TNF blocker I use ENBREL 50 since 2012 how about your eyes any iritis uveitis inflammation on the eyes ? Any exist ? On you ? This are the Fisrt symptoms the fybromalgia is also as well psoriasis , all combine or some alone , a good doctor can see on MRI if you have AS , I cannot tell you what to do or to use , but the symptoms you have may help you understand what you have , also do ESR CRP if those are high means inflammation, you cannot say I think I have AS , confirm it and try a treatment, it start from a gene HLAB27 with inflammation together, very complicated case and disorder with no cure , tryptanol or amytriptaline is for depression, anxiety etc also you are allow to have a second opinion, try to found from your symptoms what you have no say I think , autoimmune disorders are serious cases none of us want to use those but we have no choice when the attack start you will

      Know how it look like to have AS 

    • emma01302
      emma01302 ted07101

      Posted

      Yeah I have IBS but no eye issues. I'm hoping it's not AS but I don't want to ignore it if it is just for things to get worse.

    • ted07101
      ted07101 emma01302

      Posted

      IBS  sulphazaline is good and buscopan helps ,it looks to me you no convincing what you have ? But you feel certain symptoms, in 1984 I start have uveitis inflammation on the eye plus severe back pain back then they have only predisolone , drops and tablets I was also look for this that etc etc ,24 years old then , as they progesss the medical profession they found what Is it ,HLAB27 Gene active I see many eye Spesialist , the report on my MRI no say I have active AS when my reumatologist see the pictures he say you do Have bamboo spine Ans I am a doctor I no need to see the report , fusion. Of the spine , is the immune who attack in the 90, they give me sulphazaline 500 I was no take regular the slow release I realease no go along with me as the direct release go , some give me Indocid clironil etc etc the tryptanol is for anxiety disorders ,I use that to plus sinequan then 80 , now a days this are dangerous drugs as they find , around 2011 I see one female reumatologist she put me on ENBREL 50 weekly all change then ,I stop on 2014 because I have to Remove the thyroid , HUMIRA no work on me Consentyx or ENBREL try they do give ENBREL for many reasons but your doctor have the choice or try sulphazaline 500 direct release and Celebrex and if you feel Better okay , what to say ,here is forum. I cannot do you have this or that MTR No work on spinei try toxic drug , if your doctor is no helpful found another some have different ideas , just do some blood tests if you have high. ESR CRP

      LFT and full blood count you see there is the lempishytes are active normally are , all the best 

  • garyjm3617
    garyjm3617 emma01302

    Posted

    Emma Hi, missed part of your read in my last response. Disc degenerative disease is kinda aging issue I've had quite few years (62 now). Have couple with slight bulging. Osteoarthritis kind goes along with same. Ted commented on a lot of good points. I would suggest you bring up to your Dr get blood work for mixed tissue disease. Simple blood work, ANCA marker and couple others to diagnose. Seems like I went in circles until blood work confirmed MCTD. Lot of treatment same as AS unless other organs involved. Best

    • ted07101
      ted07101 garyjm3617

      Posted

      This is like megladon within our genes is genetic issue inherited complex very complex, I have Chinese Friend doctor who Massage me fused spine regular also your food eat according to your blood type , the I am 61 age is a number I was a body builder health fanatic this start on me 24 years old , the megladon within no ask for age , it is white cells with no control I also use B12 injection as build the red cells , plus graviola , no accept this as normal , all people have by some arthritis if your CRP CSR is high then you do have AS especially if HLAB27 is positive, the TNF work , concentyx or ENBREL , the gout or Uric acid can be yes is medication Call alopurinol for that ,but primary the immune turn on tissues amen joints , no need to make serious issue ask your reumatologist to do some blood tests and if is good doctor he knows if is AS then he or she can go to plan B , it is very bad disorder trust me if you can control it is cure , no to much suppress the immune however can cause cancer I remove my thyroid for cancer 2014 I am okay now thank God ,many people haven this issue kind regards 

    • ted07101
      ted07101 garyjm3617

      Posted

      Arthritis is bad autoimmune disorders is also bad but a good doctor can diagnose and prescribe, doctors no allow they patients to wonder. Ask the doctor to act and give you the correct diagnosis plus the medication who go to fix the issue I have HLAB27 plus inflammation I know i have AS I use ENBREL 50 per two weeks sulphazaline plus Celebrex plus D calcium and magnesium ask the doctor there every country have different system wish you all well 
    • garyjm3617
      garyjm3617 ted07101

      Posted

      Ted on Cosentyx, just started three weeks ago. Was on Humira. My Dr had me go on vitamin D, calcium (1000mg with magnesium and zinc. 1 pill). Ha've osteoarthritis in back and neck. Was taking Prolia shot build bones. Take 15000 IU D/day, get in 40's on blood work for vitamin d. Since following Drs guideline I'm now off Prolia drug. Bones good according to scan. She told me not good keep taking shot when bone density goes to normal. If you have AS get vitamin D checked. At 10000 iu day I was at bottom of lab spec. Everybody different. Feel better since on Bit D supplement. Cheap to take. Best

  • BobbiDi123
    BobbiDi123 emma01302

    Posted

    Hi Emma,

    I had AS for a number of years, and ultimately found that all my aches, pains, stiffness and joint fusion were symptomatic of a larger problem, systemic inflammation driven by a life-long pattern of poor diet. Doctors will treat your arthritis with any number of drugs, but for me they all came down to immunosuppressants. While that helped, I was still left with all the other issues like low thyroid, GERDS, etc. Fortunately I did enough research to see the connection between eating habits and development of disease. I corrected my diet, have been off all drugs for 8 years, have perfect blood work, and skateboard every day at age 54. Here are the culprits:

    1. Gluten (wheat, flour, rye, barley) is an indigestible protein that triggers the immune system and causes gut inflammation, allowing toxins to enter the bloodstream. Gluten antigens also cross react with tissues in the body like the thyroid and pancreas. I had to be gluten-free.

    2. Lectin (gluten's big brother) attaches to cell membranes in the joints, causing inflammation. Lectins are in most foods, so only low lectin foods chould be eaten.

    3. Sugars and processed foods are highly inflammatory and acidic. I stick to limited amounts raw organic honey.

    4. Alkalinity - I learned I needed to balance acidic foods (meats, nuts, sugar) with alkeline foods (greens, magnesium, etc.).

    5. Dairy is extremely inflammatory. Go coconut mike.

    6. Processed oils rancid quickly, and create trillions of free radicals that strip your cells of electrons. Go coconut oil, palm oil, or fats in their natural state. 1/3 of your oils should come from omega 3 (flax seed, fish, etc.).

    Here is my daily mainstays (always organic):

    1. Pitcher of raw veggie smoothie with a lemon.

    2. Can of wild caught sardines or fresh salmon.

    3. One sweet potatoe.

    4. Two eggs.

    5. 4 oz of berries.

    6. 1 apple.

    7. 4 oz hamburger patty or chicken.

    8. Couple tablespoons of almond butter (without sugar) and raw honey, or similar low lectin nuts (walnuts, macadamia, etc.).

    A colonic detox is super helpful too. Main idea here is to heal your gut. Two days on the right foods and you will see immediate results. NO CHEATING!!!

    Best thoughts...Bobbie

     

  • ted07101
    ted07101 emma01302

    Posted

    The best disorder I like to talk is AS many talk about anxiety make me nervous AS is educational, inherited disorder autoimmune but can be controlled with positive mind and some medications all things is possible 
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