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Diagnosis nightmare, need help and advice

Posted , 8 users are following.

mandy20434
mandy20434

Hello!

I wonder if anyone could help me. I'm here because my Drs are not taking my symptoms seriously.

I've been very unwell for about six months now. My symptoms are:

Dull and biting upper abdomen pain that began in the centre and left and now affects the right side too. Also pain behind right breast bone and in right shoulder.

Dizziness / near fainting

Feeling nauseas a lot

Unquenchable thirst

Sore throat, runny nose and sore chest.

Joint pain and flu like aches

Rapid weight loss despite no change in my diet and having a good appetite (over a stone since mid Dec)

Fuzzy brain, pressure in head

Neck pain.

Loose stools

I think thats about it. I've had most of these symptoms for six months apart from the thirst and weight loss which came on the last two months.

Drs have done tons if bloods but just keep repeating the same ones (liver and kidney function, pancreas, full blood count, clotting rate, etc) - all normal apart from slightly raised white cells. Sometimes I have a bit of a temperature. Endoscopy only showed small hiatus hernia. Chest X Ray & ultrasound of liver, pancreas, spleen etc all normal.

Drs are starting to treat me like its all in my head. This, along with trying to cope with my scary, debilitating symptoms makes me very depressed which isn't helping as just convinces them even more that I'm mental :-D I'm so frustrated as think my symptoms warrent further investigations but my Drs are starting to get tired if me going up there every week. I even paid to see a specialist this week and he wasn't much help either. Said all my test results are clear so not much he can do. He is doing a fivriscan but doesn't think my liver is damaged. He said my weight loss must be my diet but I told him my diet is the same as its always been. The pain is in the area if my pancreas and liver and came on after I'd had a few cocktails at a party. I'm so seeing if my pancreas is protesting but Drs keep saying its fine because I'm not yellow and my bloods and ultrasound are normal. I know my body tho and know something is wrong but am becoming too I'll to fight with them. I can't even go out to the shop for long without feeling very weak, achey and foggy in my head.

I read that chronic pancreatitis doesn't show on blood tests and the ultrasound doesn't always see the pancreas well? Although the girl who scanned me said she had a clear view as I'm so skinny now.

I really don't know what to do next but I need to know what's wrong so I can sort it out and get better.

1 like, 17 replies

17 Replies

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  • corinne34476
    corinne34476 mandy20434

    Posted

    Mandy I feel so bad for you of  course you need answers. I've got chronic Pancreatist,gallstones and cysts. I've had many tests but the one I found most useful was the camera down my throat (endoscopy) this showed up 5 cysts in fact one burst on taking a biopsy. My symptoms are very alike yours but not so many, The most trouble when It started was horrendous pain on my left side,total loss of appetite,weight loss I'm talking 2 stone. I was 10 stone to start with this all came in 6 months.I was admitted to hospital and the the results were as above. I'm now on medication (Creon,Morphine and Tramadol). My thoughts are with you I'm sorry I can't be more help.
  • marie66624
    marie66624 mandy20434

    Posted

    Hi many I. Understand what you are going through. I have paid privately for an ultra scan and I have been sent for an endoscopy this week. The stress and worry is tearing me apart. I cannot even explain some symtoms I feel but whatever you do don't Google search for your symtoms cause you will be terrified. My prayers are with you. I pray that this thing we are going through will be a thing of the past soon.
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