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Diagnosis on hospital discharge letter?!

Posted , 2 users are following.

lau188
lau188

I was admitted to hospital 2 days ago and on my discharge letter on the diagnosis part it says postural orthostatic tachycardia syndrome (PoTS) does this mean I have this syndrome? The doctor did do tests for it whilst I was in hospital and he did mention it to me before the tests that he thought that's what it was.

Thanks smile

0 likes, 3 replies

3 Replies

  • Guest
    Guest lau188

    Posted

    Basically yes, but you should discuss the diagnosis with your GP smile
  • lyn1951
    lyn1951 lau188

    Posted

    i am no expert, but isn't POTS a symptom rather than a diagnoses. 

    My husband has Heart Failure or Dialated Cardiomyopathy, cause unknown.

    His heart is all stretched out on his left side which makes his heart muscle very inefficent, in pumping blood.

    As i understand it like a bulge in a tyre, so far have avoided the blowout.

    He had normal blood pressure, which the Dr's were amazed at, heartbeat within normal range, and no swollen ankles, but nearly died of congestive heart failure, as his lungs filled with water, all he had was a dry cough, and was very sleepy, started sweating up a storm for no reason, so took him to the hospital.

    Admittted and a range of medication given to him to help support his heart.

    That is 5 years ago now, and since then has had many visits to specialists at the hospital, where they are watching him very carefully, every six months he has a echcardiogram to see how his heart is going, the heart failure improved the first 2 years and then has slowly got worse.

    Just before easter his heart beat dropped to 30 beats a minute, far too slow to be healthy, at home on our home monitor.

    Again Blood pressure normal for him. 

    I took him to hospital again where they diagnosed branch bundle blockages both left and right, pacemaker and defib installed, he has improved out of site, but they were very careful to say they didn't know if it would help or not.

    All of what I have described are not the diagnoses, but symptoms of his heart failure.

    Again don't be afraid to ask questions, if the Dr's think you are taking really good notice of what they are saying I have found they fall over themselves to help.

    We always have a list of questions written down, and or observations about how my husband is feeling.

    We have followed the Dr's diet recommdations, seen a dietician, and lost alot of weight, watched fluid intake, got rid of salt in our diet, found after a battle with no salt, you do get used to it eventually. 

    Now cannot eat corn flakes, too salty. ughhhh.

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