Diagnosis or not?

Posted , 9 users are following.

After 2yrs. of uncertainty, my Rheum. sent me for a second opinion to a Professor of Vasculitis at a different Hospital. She cut my Pred. to 15mgs. from 20mgs. then sent me for a second PET/CT scan, a bone scan, and a CT angiogram on my aorta. The PET/CT scan was negative (allowing that the Pred. could interfere with the rresults), the others were also negative. I had a Temporal Biopsy in Nov.2015 which was non-specific. They have now reviewed the Biopsy and say it is consistent with a diagnosis of GCA. as it shows a moderate chronic inflammatory cell infiltrate across all three layers of the vessel wall. There is more, but I can sense snoring and boredom setting in. My CPR rate has never really fallen, Ihave had a few urinary tract infections, for which I am now taking antibiotics. I want to breath a sigh of relief, then I think I am going barmy as, who wants this disease? I am grateful to the Professor who has moved things along at great speed. I would also like to thank Eileen once again, who recommended I ask for a second opinion, and once again she was right. Lets hope from now on things get better.

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  • Posted

    Hi,

    I would appreciate it if you inform me that being on the Pred you have urinary infection and then took antibiotic.

    I will be waiting for your response. Thanks.

    Good Luck

    CW

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