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Diagonosed with Pemphigoid Gestationis

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Guest
Guest

I am 38 weeks pregnant and was recently diagnosed with PG. I hope this post can help another woman suffering with this horrible condition I was diagnosed with PG after going to my dermatologist regarding red itchy bumps that started on my thighs. The itching was unbearable. My Doctor did a biopsy on the biggest bump on my leg and informed me days later that it was PG. The bumps start out small and itch intensely. It's an itch that is indescribable and can become painful due to how intense you scratch. I was put on 40 mgs of Prednisone taken once a day before 9am. I have been on it for 8 days and I can't say if it's working as the rash has increased and spread to every part of my body except my face. I take frequent cool baths with aveeno oatmeal fragrance free bath wash and I soak in oatmeal baths. I slather myself in calamine and use on steroid creams, cortizone and aveeno anti itch lotion on my body as well as gold bond powders. I have very few periods of comfort and my skin is constant state of unease. I am hoping to get relief from this on the delivery of my baby although from my research delivery does not always relieve the condition and it may last for weeks after. I am not sure of the outcome but I am praying because I can't imagine dealing with the pain of a c-section and this disease with a new born baby whom I pray is not in the percentile of baby's born with this rash (a milder form with shorter duration). I recommend frequent cool showers, staying in air conditioned or very cool environments, benadryl and the prednisone which I hope starts to get rid of this.

0 likes, 5 replies

5 Replies

  • Guest
    Guest

    Posted

    Hi. I was diagnosed with PG right after I delivered my son on Aug. 18. The rash started about a month prior and i can relate regarding the itch that is HELL ON EARTH. It started on my belly, then spread to my thighs. After i delivered, it exploded all over my body and i developed huge blisters on my thighs and smaller ones on my lower legs and arms. It spread really really quickly so if you're already on prednisone, that is awesome. It does the trick. Takes a few days to start working (I started 3 days after giving birth and it started to work about 5 days after beginning treatment) but it's powerful stuff, unfortunately at a price. (I have really unpleasant side effects)

    It's been almost 2 months since my son was born and the rash is not gone. It is under control somewhat under prednisone but i feel like i'm going to have to be on this steroid for a long time because when i start to taper, I feel the itches and tingles come back and small red bumps and sometimes hives reappear. I was/am super traumatized by this freakish disease. Prednisone is awful too, especially combined with the hormones from giving birth and dealing with a new baby, etc. Good luck to any who have this. I came online scouring the internet to find others who have it. So awful.

  • ann250968
    ann250968

    Posted

    Hi, I was diagnosed with pemphigoid gestationis 19 years ago and i wouldn't wish it on my worst enemy. It took me 2 and half years to get it under control. I was sterilised so i didn't get pregnant again because i couldn't take any oral contraception. I am now ok but get rather itchy skin still and have now been diagnosed with underactive thyroidism which i believe is linked to the condition, so i advise people to get tested for this too.

    Good luck to anyone with this condition.

  • Guest
    Guest

    Posted

    I got the first signs of PG about 2 hours after I gave birth (nearly 9 years ago). The doctors at the time thought I had Scabies and treated me with various creams and ointments until i demanded to see a consultant dermatologist. He recognised PG straight away and put me on Prednisolone immediatley. The rash was so bad by that time that I ended up staying on the steroids for 18 months, taking another 6 months to wean off properly. It was HELL! The worst time of my life and I would not wish PG on anyone, unusually I even got the rash on the soles of my feet!! Nearly 9 years on and I now find I have a very similar looking, very itchy, localised rash on my leg which my GP doesn't seem able to treat. She is now sending me for various bloods and biopsies as she believes it may be from the PG and hormone related. I just hope the rash remains localised as I dread the thought of going back on the Prednisolone. Good luck to anyone who has PG. Insist on being treated by a specialist. PG is so rare that most practitioners have no idea what it is.
  • varsha_04517
    varsha_04517 Guest

    Posted

    I am 27 year old i diagnosed PG in 06 month pregnancy and red rashes on my all body it's so itching n painful please help me what I do?

    I am admitted in hospital

  • varsha_04517
    varsha_04517 Guest

    Posted

    I am 06 month pregnant n 27 year old I diagnosed PG please help what can I do? Red rashes on my all body n it is so itching and I admitted in hospital past 8 day's

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