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Hi RA Friends, newly dx-ed and have a question. Did you tell people outside your immediate family/friends that you have RA? For instance, did you tell people at work? I told my bosses becuase I had to due to needing time off and also to explain frequent illnesses. But I am wondering if I should tell my staff, who also sees me out often or leaving early. By the same token, I don't want to be defined by my diease or be seen as someone who wears it like a badge. I am struggling with wanting to explain myself but, conversly, not wanting to sound like I am making excuses for myself.
I had a number of vaccines Monday, including Shingles/live vaccine. My Rheumy required it in order to put me on Humira. I was fine until Tuesday mid day, then I started falling asleep while sitting in my chair, on the train, at home in front of the TV (this has NEVER happened to me before. I am the type who has to take sleeping pills to fall asleep. I have NEVER spontaneously fallen asleep sitting up). Then, this morning, I just couldn't get out of bed. Stiff, sore, exhausted. I told my bosses. I have a call into my Rheumy but everytime something like this happens, I am compelled to tell people, but hold back thinking maybe I shouldn't. If I had cancer, I would tell people. I just fear people don't take "just arthritis" (which we all know this disease is NOT) seriously and so I'll sound like a whiner. Then I thinnk, maybe I should give a brief description of what RA really IS when I explain that I have it. Then I think - much like this post - that is just TMI. Ugh.
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