Did you have any warning signs

Posted , 7 users are following.

Hi all 

Did any of you. Have any warning signs before you were diagnosed with pancreatic problems? 

I’ve been having left, central and right sided chest pains but it’s high up not abdomeninal pain definitely more in the chest  for over a year some times the pain will last days.the pains never more than a 6/10.... Ive also had light yellow stools for over a year and go sometimes 6 times a day I also feel dizzy sometimes.

I’ve had a fibroscan on liver that’s fine 

Ultra sound on gallbladder showed a polyp to small for it to cause problems so I’m told. no stones 

Bloods come back fine

The doctors have no clue been on omeprizal for months for reflux.... it’s not that 

I’ve ruled out ibs after eating only veg and apple juice for a month with no improvement. So the only thing left is pancreatitis any one else’s problems start like this ? Please I’m going out my mind . Thanks for reading 

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15 Replies

  • Posted

    hi im pretty much the same only my pain is under ribs on the right radiating to back Had 5 different scans all normal and bloods normal. apart from the ultrasound scan I had first which revealed a distended duct in my pancreas. But no one had mentioned this since. I have stopped drinking and eating fat,(although no one has told me to stop, and I didn't drink much anyway)  I am fed up of moaning but I would rather be diagnosed with something than left like this

    Sue

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  • Posted

    Hi dannybob.  Sounds like your doc's have been busy trying to sort out your problem however I'm wondering why they haven't recommended a CT/MRI of your abdomen or an endoscopy which sees the pancreas clearly.  Your stools are a bit of a giveaway to me, the colour and frequency.  If you have Chronic Pancreatitis your bloods won't necessarily show much of anything so not always helpful.

    Omeprizal is a PPI which can eliminate or reduce nausea which is a symptom for many with Pancreatitis.

    Is your pain worse after eating?  Do you find some foods upset you more than others?  A low fat diet helps and is essential for people with Pancreatitis.  There's a variety of foods that fit the category so dietary boredom doesn't set in.

    I don't know what kind of doctor's you've seen but if I was you I'd ask for a referral to a gastroenterologist who specialises in the pancreas.  Gastroenterologists in the main don't necessarily know the pancreas beyond the general.  Seeing someone who specialises in the pancreas is important. 

    My warning was similar to yours, the loose, discoloured and frequent stools, pain in the left upper abdo region beneath my ribs going through to my back being the main ones.  The thing is there are so many issues with those symptoms that it can take time to sort.  Don't take alcohol or smoke (the pancreas really really hates smoking) and adopt a low fat diet until you're sorted.  Good luck.

     

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    • Posted

      To be a little bit fair on my doctor I’ve not pushed that hard. As the pain always seems to settle by the time I see a doctor. If it was my pancreas is it possible to have mild pain ? I’m 100% getting this sorted out now  and we’ll be pushing for deter tests 
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    • Posted

      I’ve had similar symptoms and been diagnosed with cp and then told no I don’t have CP but IBS.  Whatever you end up being diagnosed with, do yourself a favor right now and quit drinking or smoking if you do those things and eat a healthy diet, no processed foods.  No fried foods either.
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    • Posted

      I'm not typical medically speaking so my experience may not conform to the usual pattern of onset however my pancreas pain (I didn't know that's what it was at the time btw) was more like a high stomach ache, with shooting sharp pains sometimes which went through to my back.  Others describe their pain as terrible, totally debilitating, mine wasn't, and isn't still after nearly 2 years since diagnosis.  I also had terrible bowel issues, pale/yellow stools, and often dizzy for some reason.

      I was shocked when told it was Pancreatitis, even more so when told I have chronic pancreatitis.  I'd never been a drinker and always ate low fat because of my other medical issues.  I'm diagnosed with auto-immune chronic pancreatitis.  My point is we're all different and can present differently.  

      I guess I'm saying yes one can have mild pain, especially (I'm told) if one has chronic pancreatitis.  Keep pushing.

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    • Posted

      Thank you for the reply. Even though it’s a scary one . Can I ask how old you are  I would say I’ve never had shooting pains just a dull ache and it’s always quite high I’d say next to my sternum. But the pain dose go to my back sometimes....
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    • Posted

      Sorry I scared you.  Anything going wrong with the pancreas is a bit scary as it changes one's life choices re food and alcohol and cigarettes and we humans don't like change.  

      Your pain/ache does sound a tad high and as I said before there are many issues with similar symptoms so I'd keep pressing for answers.

      I'm in my 60's although age isn't relevant to my disease.  I hope you get sorted soon.

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    • Posted

      Hi again yes I agree age isn’t really a factor as I was reading about a child that had CP the other day... it’s a cruel world. 

      I saw the doctor again yesterday about a blood test a few days before Christmas.  he went over the test and said there is nothing wrong with me. I was in pain at the time of the blood test so his thinking is what ever is going on. Would show up as I was having a flare up at the time. He actually circled part of my blood test and said the numbers for pancreatic function  were lower than normal and if it was my pancreas the number would be through the roof .

      AMYLASE.  27. IUL.   28/100

      I have no idea what the numbers mean But I was then sent on my way with pain killers and gastritis meds and now have to do a stool sample frustrates me this can not be gastritis I don’t get heart burn or any thing like that..

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  • Posted

    Six months before my initial attack I had little appetite, nausea, pain upper right quadrant. I saw a gastroenterologist who scheduled a endoscopy. Keep in mind  I had had a colonoscopy only two weeks previously. The conclusion from this was...I was constipated. I So I let it go. 

    I teach, was having lunch. I felt fine that day except for a headache that morning. After eating and carrying on a normal conversation suddenly I had the worse pain throughout my middle, back, and chest. I couldn’t speak. The school nurse sitting across addressed me and said you don’t look well- I shook my head. She immediately began pulse, blood pressure. They called my husband after I shook my head no to an ambulance. I was wheeled from the building in a wheelchair and taken quickly to the nearest ER. Finally after lab results came back, the dr said my lipase and amalyse was 3 thousand times over the normal amount. I stayed for four days. I never drink alcohol, no meds caused it, I haven’t had a gallbladder in 15 years. Idiopathic they said. 

    Now 2 years later I still have upper right quadrant pain under my right ribs that go around to my back. In the past 3 months I’ve had mrcp, endoscopy, colonoscopy, 2 hido scans- bile duct and sphincter of oddi, ultrasound of bile duct. Every test is “normal”. I don’t understand.

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    • Posted

      So you had no left sided pain that seems odd for pancreatitis Funny thing is I bet if you still had your gallbladder the doctors would be putting the blame on that. I’m m glad you at least found the cause 
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  • Posted

    I have all the above but I feel as though I have ahuge lump under my ribs after eating  Sue
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