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At my last visit to the NHS eye clinic the letter I was CC'd in on gave the diagnosis of a stable glaucoma suspects after my OCT scan, the letter before this described me as having pre-perimetric glaucoma. I have subsequently have a a telephone consultation a month a go (due to covid) and had a good chat with the doctor (for once) i was told yes there was nerve damage but not enough to cause problems and no progression, my visual fields always fine, although not as good in my right eyes as my left (which has no damage). I told her about how worried I was and the the thought of vision loss is causing me anxiety and loss of sleep. I was told there is nothing to worry about, I'm only being treated as I'm young, if I was older they'd just monitor me and it is unlikely i'd lose any vision or be confirmed as having glaucoma anytime soon. So what do I receive today, a letter to my GP telling them that I have glaucoma in my right eye!
I can't believe this and have been in tears. I can't understand what has happened. How can I be told all of these things and then receive that letter? Also, don't they check the previous letters to make sure they are being consistent? And how can they move me from a suspect to confirmed without even doing any new tests? This is on top of my highstreet optician telling me he can't see any evidence of glaucoma, now my pressures have been lowered.
I'm so confused, has anyone else every had issues like this?
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