Disability
Posted , 6 users are following.
hi, help advice needed please (please forgive spelling mistakes or word displacements but brain does not always work and the word I am trying to say just doesn’t come out of my brain) foggy brain syndrome.
has anyone been given a disabled badge,
i am in the early stages of Maybe being diagnosed with cfs,at the stage of eliminating everything else,been off work now since August. I did have flu at big inning of may and couldn’t shift it, I still went to work everyday and ignored the symptoms. But in August one day I could not get out of bed for 3 days straight and it frightened the life out of me. I am a person that is always on the go, even when I sit down I am making list of what needs doing next and make lists. So to be hit with this illness has hit me very hard, headaches, flu like symptoms, aching joints as if I am riddled with arthritis, have 2 good days then bed ridden for 2 not being able to get out. And the most difficult one to deal with for me is the brain fog. My short term memory is shocking,
for example, I will be talking and then listen to others talk, I go to make my point and cannot remember what I needed to say, so then I panic and try to consintrate on what I need to say, I miss the entire conversation of the other person and have no idea what they have said. So have given up trying to mix with people. Thiis is making me panic as I cannot see how I can go back to work and carry on as normal,as people will think I am thick and stupid. That is if I can actually get out of bed to go to work. I have to park 8 minutes walk away to and from work and don’t think I can walk that far. I have attempted to to out in my car to the supermarket only to find I have got jelly legs half way through my shopping task and have to sit down to get my strength back before dropping all shopping and going back to my car. Then this takes about 6 hours to recover. This illness is making me nervous to go out without being accompanied or only going out wher I know that parking is close and I know exactly what I need and go and come straight back.
i have had 3 holidays booked to go abroad,only to pull out last minute as I am scared of not having the ability to make it from parking the car to getting to the airport to walking all the way through the airport. And this is only 1 side effect of this disability not mentioning headaches, aching joints, This does not even address the issue of getting dressed (forget putting on makeup,straightening my hair and getting dressed just to go out. This in itself is such a challenge, I find myself wearing the most easiest thing like pull up trousers, and fleece top to make thing easier) I feel like I am a 47 year old living in a 90 year old persons body.
has anyone been given a disability blue badge to help them.
0 likes, 15 replies
Rener Yojnhyt
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Yojnhyt Rener
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Yojnhyt
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I am desperate to get back to work as I TrueType love my job, but cannot see how with the way my brain is is not working properly.
Help and advice please....
Beverley_01 Yojnhyt
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They cannot get rid of you from work just like that. A friend of mine was working and couldn't go back. The company said they couldn't go back unless on full duty. They had regular meetings with my friend of which i was often present. They have to look at cfs/me as a disability and make adjustments if possible. You have a long history with your employment and hopefully this will be recognised.
janet71271 Yojnhyt
Posted
Hi I was on half pay for six months then half pay . At the end of that year of sick my health had not improved intact was worse than ever. My then consultant said I was not fit to return to work in the foreseeable future and said I was chronically chronic ! Not just chronic. I was certainly very unwell .HR and my ward manager came to my house twice . I was instructed the only thing to do was to take ill health retirement. I was a senior staff nurse at great Ormond street. Had been nursing nearly 20 years . totally devastating. My consultant wrote a fabulous report for NHS pensions and I was given mine a week after sending the forms in..I wasn't even 40 yrs old.
Your management cannot just decide behind your back to get rid of you. It has to be discussed with you. In the end once you know where you are with a possible diagnosis etc, you will have to be up front with them. I tried three times to return to work before I went off sick for that year. I virtually collapsed one-day at work and had to go home.Was diagnosed about two months into it. But had been unwell for nearly a year with infections which gradually led my body into ME as it was called then. It had not been helped by carrying on working. The traveling to and from work . my partner was then diagnosed with type one diabetes. Lots of stress was abounding .
The stress of worrying about your job and the thought of maybe having to give it up is not helping your health issues. It becomes a vicious circle. I understand, but you also need to think about your own preservation . you clearly sound unwell and need to take more care of yourself. Have you thought of doing your shopping online ? It is my only mode of shopping . it would make life much easier for you. I am not saying you should completely give in, but if you don't address your situation soon you may have no choice. The human body is amazing but can only tolerate so much. Take good care and best wishes x
Yojnhyt janet71271
Posted
thanks for this, my difficulty at the moment is trying to accept my disability, at first I just slept and thought that would let my body heel. After 2 weeks I thought I was getting better and started to catch up on some housework, but was the next day I was bed ridden for 2 days recovering from cleaning and just trying to get on top of things. The following week I was feeling better with more energy and I thought this was a mind over matter issue so went to the gym and hoped to start to rebuild my strength - huge mistake this made me bed ridden for 4 days ( and I only did walking on the treadmill not running, the did some rowing for muscle building very lightly, I felt great) until next 4 days.
i think my biggest issue is acceptance, and having to adjust to this awful disability, now my brain has become stupid in forgetting things and all I can describe it as brain fog..
janet71271 Yojnhyt
Posted
Sounds like you really knocked yourself off. Indeed try to come to terms with your problems. You don't have to totally accept it. They are not quite the same thing. Come to terms with it and you will be able to focus on things better.
Every aspect of CFS is awfully debilitating in one way or another. Try to take each day at a time. It will only serve to make you even worse and for longer pushing yourself like you describe. Put yourself first as only you control you . Might sound selfish but it is as it is unfortunately. Take care x
Beverley_01 Yojnhyt
Posted
Hi there,
Am guessing you're in the UK by asking about blue badge. You have to be eligible for personal independence payment (pip) and get the mobility part of it to be able to get a blue badge i believe? You can apply for pip even if you are working.
Re: going abroad and airports, they have wheelchairs you can use but you have to request them so ring the designated airport ahead of time to make sure this is the case.
Beverley
Yojnhyt Beverley_01
Posted
regards
tk
Beverley_01 Yojnhyt
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Teacher40 Yojnhyt
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Yojnhyt Teacher40
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regards
tk
Beverley_01 Teacher40
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Thankyou, guess it could be different for different counties and didn't think of that.
B
Rener Beverley_01
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Airlines just need to be notified ahead of time and They should help! Also once on plane make sure to let flight attendant knows too! They can really help and will make sure You get to where your going!! I hope You feel better soon and I don't think Your job can let You go just like that. You sound like You have a good work relationship there and it's not habitual!!!many prayers for You!
janet71271 Yojnhyt
Posted
DLA was changed to PIP a couple of years ago. All on DLA have to apply for it. It is a nightmare process for many of us with CfS/ME. I went to hell and back. Had a home visit assessment by the clowns called atos. A nurse who made half of her report up. Wrote some ridiculous things. It was disgusting .My short term memory is also shot . I have cognitive issues. Stupid woman wrote because I had been a senior staff nurse I had adequate cognition. It has been at that point 19 years since I last worked ! Anyway, the DWP only went by her lies and ignored my own information . I was made out to be making most of my problems up. She ticked I could walk up to 200 metres. The truth is I can barely walk round my house some days. And generally to the end of my driveway is far enough and I usually have to stop at last once. It is just 10 metres long. Needless to say really but I was not given pip.
So I asked for a Mandatory reconsideration. Failed that. So it went to tribunal appeal. I was not up to going so had a paper appeal. Failed that too. I could have gone to the higher tier but I had been humiliated enough.
Just saying that it is not a given definite anyone will be awarded this benefit. It is a cruel and horrible process. I had been on DLA since 1996. My health has deteriorated as the years have gone on. So all my problems plus new ones are much worse than when I first applied back then. But things have drastically changed because the aim is to get people off benefits. And there are targets to meet for both the DWP and assessment companies like atos. They do not care. I know many people with CFS/ME fibro who have gone through and are still going through all the rubbish .