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Disappointed with my 2nd spinal cord stimulator

Posted , 4 users are following.

christyl87594
christyl87594

I suffer from rsd in my left leg and foot from a auto rollover almost 3 years ago, I was diagnosed when within days of the accident I started getting the worst pain and burning, I thought I was going to lose my mind. After 6 months I decided on getting a spinal cord stimulator but after 3 months of implant it failed to keep working so it was removed and I had another stimulator implanted but by a different company. Ever since this was implanted I've noticed that I'm not getting the relief that the first one gave me even though I've had numerous adjustments. The sensation covers the areas I need covered and stays strong for a bit then it feels like it's weakening no matter how much I can increase the programs. Has anyone had a problem like this? The rep did diagnostic testing on my stim and couldn't find any issues with it.

1 like, 7 replies

7 Replies

  • Gogee123
    Gogee123 christyl87594

    Posted

    Christy I had the Stim for 6 months. I had it removed. It never reached my feet. A total waste of time. I had to diagnose myself. The dr agreed I had it. 2 years later I am in unbearable pain.

    Get rid of the stim!

  • juliescottie
    juliescottie christyl87594

    Posted

    Hi, I was the second person tho have a dorsal column stimulator back in the 90s I then went on to have a further 17 before I finally said enough!!! I'm now left with 2 small bits of titanium which can't be removed, my point is just be careful I wish you well

  • kirstin57057
    kirstin57057 christyl87594

    Posted

    I came on this site to see what people have experienced with spinal cord stim as my doc want to put one in. I have had CRPS x 22 years. I used an external device (Quell) but found the pain was annoying. The vibration sensation was painful at the higher levels. Yikes!!
    • Gogee123
      Gogee123 kirstin57057

      Posted

      I understand from my pain dr that the newest stimulator doesn’t have to be charged and doesn’t buzz or humm 
  • juliescottie
    juliescottie christyl87594

    Posted

    Hi I'm a little biased against having a stimulator having had so many unsuccessful ones and the damage that they left behind but that doesn't mean to say that it won't work for you if an external device gives you some relief well that's better than none, I suppose my advice to you would be look at the pros and cons, what will life be like if it works and if it doesn't. You say that you've had this for 22 yrs so like me you must know every trick for distraction technique, I wish I could be of more help.

    good luck. If you'd like to contact privately we could email or txt. Julie

    • Gogee123
      Gogee123 juliescottie

      Posted

      They are offering me the newest one that doesn’t buzz, humm or need to recharge. I’m thinking about it 
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