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Please can someone help me? Because I'm having no luck with Opticians, GPs or the eye clinic.
I have Septo-optic dysplasia, and I'm lucky if I ever get to see someone who's even heard of it because it's apparently one of those rare and awkward conditions with varying symptoms. But basically, in my case, the nerves in my eyes didn't develope well or at all.
I have 6/60-6/48 vision in my right eye and 0 in my left eye; as in I don't even see black or anything at all. I don't think light could ever get in there.
My most recent check up at the Optician showed some discoloration on the optic nerve in my left eye (the blind eye). It appeared black, apparently, which my Optician said meant it had been there a long time, as aposed to grey? But no one seems to know if this is normal for an optic nerve that never formed properly.
Apparently the discoloration is not mentioned in any of my letters on record, though. Is that weird? That's the only thing making me worried. Some people say it should be obvious so not included, but others say that means it's new?
I've tried researching this myself but Google says apparently now I have possible optical nerve tumours. That sounds horrible, too. [sad]
I just need someone who understands. Please help. Thank you!
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