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Discontinued clexane in sinus venous thrombosis in my 3 year old daughter.

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becky07099
becky07099

HI, my 3 year old daughter suffered from a sinus venous thrombosis secondary to mastoiditis back in march of this year.

The clot has not dispersed nor has she re cannulated around the clot. she has had yo have 3 lumber punctures due to raised ICP and is currently on Topiramate 15mg BD.

We have just been adviced to discontinue the clexane (its been 6 months) as its not effective any more. we are reluctant to discontinue the clexane due to the clot still being in situ. Has anyone has experience of this or can offer me advice?

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