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Distraught

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Assilem7477
Assilem7477

I had my biopsy yesterday. I'm pretty sure it will come back positive. I'm heartbroken. I'm 37. I feel like I can't be a good wife and like my life will be over.

I'm also in discomfort. Burning, dryness...I've been give Estrace for shrinking parts until biopsy comes back, but my estrogen was checked and it is fine.....I feel like I want to crawl in my coffin now...I have 3 small kids. Im finishing up grad school.

I should be happy right now...

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  • Nancy_K_B
    Nancy_K_B Assilem7477

    Posted

    Dear Assilem,  I can imagine your emotional terror over this. I just self-diagnosed myself about a month ago and then got officially from a gynecologist last week.  BUT I had to wait 5 weeks for an appt and THAT pain I wasn't gonna live with. no, no. I found this wonderful forum and I am so grateful I ran across one post from kweega 2 years ago of things that I could accomplish instantly.   She mentioned that it is an autoimmune disease and that Vitamin D helped it  read up here:  Lichen Sclerosus nearly cured.      Assilem, my apind was down within 2 days of vitamin D3 chewables I took 3 tablets to begin - 5,000IU each. She also mentioned acupuncture and i got an appt for that a couple weeks later and that helped heal the open sores. NOW I've been reading around the clock for days to create a complete protocol I can live with... as one website mentioned: "for the rest of our lives"!   It is not hard, and will definitely improve the health of your precious 3 little babes as well - once you get out of bed and USE that excellent investigative head of yours that you must have developed while working on a grad degree (ahem I have one as well, Landscape architecture - and since I'm now 72 I've had the time to "stop the world" and discover the solutions. I'll be sharing as soon as I can, dearheart. I no longer have a partner to share these things with... but you do... so enlist his wonderful loving aid in making this a family lifestyle "in" thing. AND guess what - the protocols I've been researching will take care of your husbands psoriasis as well!  

    • Assilem7477
      Assilem7477 Nancy_K_B

      Posted

      Thank you. I take a multivitamin with D3 in it but I guess thats not the same. I eat all organic and very little sugar, no dairy for about 10 days now. I've seen no improvement from diet alone. I cant stand this constant burning....

      I am so upset. I wish I had a friend I could cry with in person. My husband is wonderful, but I dont think its fair to him to have a wife that cant have sex with him. He assures me it'll be okay and we'll figure it out and marriage is for better or worse. He says not to worry about him leaving on top of all of this but I can't help it....

      I jist want my body parts back. I know this isnt helping and I need to get out of crisis mode bit I can't. How long does this terrible depression last for you guys?

      I'm going on 2 weeks now...last week went to gyno. He took blood and said he had to order biopsy come back in a week. I went back, got biopsy. He says come back in a week for results.

      I notic3d something weird with my private area a while ago, but I thought I was crazy. 8 thought my parts cant be shrinking. I didnt get it checked out. 8m upset with myself and the dr. Bc he kept treqting me 4 yeast...

    • elle2424
      elle2424 Assilem7477

      Posted

      I feel your pain. One of the worst parts of this sickness is that it’s such a personal thing, I can’t talk to munch friends or anyone about it. Not just going to start telling my friend about my slices up vjay. sad 

      The good news is that for many people the clob is all you need to really control it and youll likely have many many days where you feel no symptoms. Or at least that’s what I’ve been told and am hoping for... 

      if it hasn’t been mentioned already you may also want to try not wearing underwear if you don’t have to or wearing loose fitting underwear and definitely make sure your soaps and shampoos are gentle and unscented. 

    • sue162
      sue162 elle2424

      Posted

      The underwear tip is a good tip.  I look back and used to wear tight trousers and underwear to bed and after showering and used to wear pads for wee leakage.  Never moisturised either,  I think the clob sorted me out and things went from Snow White colour back to pink.  Also numerous cuts were helped with clob.  I think no underwear to bed and not wearing tight things in that region has helped.  
  • debi14820
    debi14820 Assilem7477

    Posted

    Yes LS is very uncomfortable. I've had it for 4 years. For comfort, trying baking soda baths. I use 1 cup of baking soda. Also you can use Vagisil Moisturizer Gel. It's a blue and purple box. You can use that every 3 days. I would alternate the days with the Estrace. I also use Emuaid on labia for moisturizer. It really helps. Don't give up. There are treatments that will help you. I would not engage in sex while having any discomfort! It could make things worse. Wait till your symptoms are gone. I hope this helps you. Take care. I'm married too and we have to wait until symptoms are gone.

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