Distraught and nowhere to turn

Posted , 3 users are following.

I am a 26 year old male, with Scheuermanns disease which causes me great pain. I have been having trouble breathing for over a year, and feeling weak and fatigued, especially after any exertion at all. Lung exams, EKG, and heart ultrasound have come back excellent. About five months ago I noticed an odd feeling in my right calf, which I can only describe as a spasm feeling that feels tight from my calf to the achilles. It has caused me difficulty with walking. I have been having trouble with my right hand. I am still able to move it but it feels weak and I have trouble picking things up, holding on to things. It is difficult to describe. It is almost like it doesn't want to do what I want it to. There is no numbness but every so often there is a very slight tingling in the little finger side. Also I have been twitching all over my body for the past few weeks. My neck hurts constantly and there is a pressure/pain where my skull meets my spine. Also have had trouble speaking for the past three years, stepping over my words, trouble pronouncing certain syllables. I have had extensive bloodwork and MRI of brain and spine, all of which came back normal. I have been so distraught and scared for so long and it seems there is no help or answers anywhere. Any feedback would be greatly appreciated

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2 Replies

  • Edited

    Hi Zach. Sorry to hear of your health issues. Has anyone suggested fibromyalgia to you? Try having a look at the symptoms on Google and see what you think. A lot of your symptoms (if not all) are those associated with Fibro.

    • Edited

      Yes, I agree with possible fibro. Need to look at the whole picture. Any update on this? Really feel for you x

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