Posted , 12 users are following.
Brand new member here. Diverticulitis is a relatively new condition for me, about a year now. After a colonoscopy in December 2017, I was diagnosed with it. Polyp removed, gut cleaned out, and on to a high fiber diet. For the next 6 months, I felt great. Other than gurgly stomach, there was no left side pain, fatigue, bleeding, or diarrhea. All was well. Then I foolishly came off the high fiber diet in the summer while on vacation— lots of greasy, fatty foods— and the pain and fatigue returned. Two rounds of antibiotics (40 days in total) helped somewhat, but after I finished both courses, it’s as bad as ever. Most days, the pain starts in the early afternoon and worsens throughout the day. Fatigue sets in concurrently, and by the end of the day, I’m toast. To say it’s interfering with my job and family life would be to put it mildly— I’m 46 with three young children, a demanding job, and a busy church (lay) leadership position. It’s become impossible to deal with.
Some days are better than others, but there seems to be no discernible pattern to the pain— if there is a dietary trigger, I haven’t identified it.
To complicate matters, I have a rare blood clotting disorder which requires me to be on lifelong warfarin (blood thinner). This resulted in a modified antibiotics prescription of only sulfa (bactrim), because the usual dual-antibiotics regimen would heighten the effect of my warfarin to dangerous levels. The single sulfa regimen already heightened the effect to the highest level it’s ever been.
Being on only the one antibiotic may then partially account for the ineffectiveness of eradicating the pain... but it’s hard to say.
So at this point, with no resolution of the pain and the possibility for the diverticulitis to worsen, the next step seems to be surgery. But for a guy who already has an unusually acute tendency to clot, coming off the warfarin in order to have surgery plus actually having the surgery and the propensity to develop clots post-operation increases my risk of clots exponentially. It’s almost a death sentence. That may sound dramatic, but it’s not far from the truth.
Thus, I’m thinking this: there has to be some other way to manage this condition without the near-fatal (if not fatal) last resort of surgery. The prospect of it is downright scary. It just can’t be an option for me.
I’ve been back on the high fiber diet for two months, plus I’ve started taking probiotics, vitamins, magnesium, krill oil. I’ve also started exercising 3x a week. I’m trying to do everything I can to lick this thing without surgery.
I’ve made an appt. with my Dr., but he can’t see me for three weeks. And at this point, I’m not confident that a visit will result in anything else other than a GI referral and recommendation for surgery. But there HAS to be another way.
I would be very interested to hear from anyone who has had success managing diverticulitis (either with or without being on warfarin), without resorting to surgery.
Lastly, I would add that it’s not in my nature to resort to hysterics, but don’t be misled by the moderate tone of my message. I am desperate. By the end of the day I’m an emotional wreck, wondering if tomorrow is the day my gut ruptures or I go into septic shock. I can’t bear the thought that my children might be left fatherless. I’m depressed and stressed out, finding it difficult to focus, and I’m beginning to lose hope. Any encouragement, ideas, and suggestions would mean a lot to me.
0 likes, 27 replies