Diverticulitis attack.

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Hi everyone. Just spent 7 days in hospital with bad diverticulitis attack. Only had a very mild case years ago. I had Iv antibiotics but cannot tolerate the oral ones for this disease. My doctor dr said the 7 days od intensive Iv antibiotivpcs should do the job. My question is,,when do you feel much better? I have no pain but still feel pretty lousy. Any replies appreciated. 

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    I was exactly the same way with the first attack I had and was in the hospital.  Determined the it was the Cipro tI that i couldn't handle orally, so when I have had much milder attacks, the doctor has given me just flagyl which is doable (I only take half the amount that they usually give) and clears me up immediately.  Probiotics with it really help, also.  It will take a little while to get your strength back, get over your anxiety, and get back on a diet that fulfills your dietary needs.  I imagine you have been on a modified diet and it take awhile to get back to where you were.  Just give yourself time and don't push it.  

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    • Posted

      Thanks so much for your reply . Much appreciated. This has been, and continues to be a miserable experience. I can't tolerate any of the powerful oral antibiotics used for diverticulitis, but Iv ones are ok. Been home since sat,  on no antibiotics, specialist said the intensive iv course for 8 days should do the trick,. Have eaten reasonably with mushy motions ( sorry tmi) afterwards, but today this has gone on all day whether I eat or not. I've just rang his office and he will ring me back. . Does this all sound normal to you? Thanks so much again for your help. 

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  • Posted

    I strongly advise getting probiotics to counter some of the damage done to the intestinal track by strong antibiotics.  They helped me tremendously.  I am still taking two a day.  I think antibiotics play with your mind/mood also, plus if you are like me, you are obsessed with doing whatever you have to do to prevent this from happening again and this brings on the stress issues. I think your digestive system will take a little while to get back to normal. Just eat a low fiber diet with lot of water to give it a break.  Gradual add back in some fiber - I have just started back on a fiber supplement - it has been three weeks since my attack.  With this disease, anything that  isn't constipation is preferable, although frequent stools are very annoying.  

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    • Posted

      Yes I've been using probiotics. I'm not sure where you are from but here in Australia they tell you to eat a normal,diet when you go home. I'm not so sure that's a good idea, maybe that's why I've got such bad frequent motions today. Thanks so much again for your reply. It's lovely to talk to someone who has the same issues. 

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  • Posted

    I'm in the US - but familiar with your area as my son lives in New Zealand and I've been there twice.  Beautiful country.  Wishing you the very best.  There are lots of different opinions on diet.  My doc said avoid seeds, nuts, popcorn.  I find small more frequent meals work best for me.  Limiting my fiber right now for awhile.  

     

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    • Posted

      i think that's what I'll do . Just can't seem to keep anything in today! Lol thank you so much once again. Appreciate it. I hope you keep well. 

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  • Posted

    Hi Beth

    Sorry to hear you have joined the DD club.  I am in the UK so you have worldwide coverage!  I agree totally with Dee and her advice.  I have been dealing with this disease for more than 16 years, and found that I have had to modify my diet but I live a normal lifestyle. 

    7 days antibiotics should be fine - here in the UK the treatment is 5 - 7 days at home.  Hospital admittance is only for emergencies like a blockage or perforation.  However, they all have big side effects and knock the stuffing out of you and it can take several weeks before your body begins to recover.  I'm glad you are out of pain as sometimes that lingers too as your insides heal.

    I am surprised you were told to eat normally straight away.  UK advice is to have fluids at first, then a low residue diet and slowly reintroduce fibre.  Then you are recommended to follow a high soluble fibre diet.  But what we have found, if you follow this forum, is that everyone is different - one size does not fit all.  I cannot tolerate gluten or full fat - for others it can be dairy, red meet, seeds, skins - all sorts of different things.  I suggest you keep a food diary and see if you can identify what makes you feel worse.  If you are an anxious personality, I suggest you include lifestyle in that diary, as many people seem to find stress and anxiety or worrying about the disease make things worse.  It's a vicious circle. 

    I think in a few weeks you will feel much better as your body recovers.  However I would also recommend if your runs are still continuing after that time, you speak to a doctor.  Some people on the forum do take half or a whole tablet of Immodium to control their bowels.  I personally don't but I do take a stool softener to make sure there is no build up of waste inside.  As a result I do go 3 - 6 times a day, but you pee at least that much anyway, so it's not a problem for me.  Better out than causing another infection.  Best wishes - hope you are well enough to enjoy Christmas.

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    • Posted

      Thank you so much for your reply. I couldn't have treatment at home because I couldn't eat or drink . And my bowel was very swollen and they were worried about perforation. I think I also mentioned in my other post I cannot tolerate the oral antibiotics.  Intravenous ones are fine. I can't eat or drink because of nausea. I had to ring my specialist today because I couldn't eat without having the runs. He said it will take a while for things to settle. I'm surprised how ill I have felt. Really wiped out and I'm a fit 62 year old and am never constipated. I eat well etc. I'm worried now because if I have another bad bout it will need to be Iv antibiotics again. Hopefully I've just been unlucky. Thanks for your well wishes and your reply . 😀

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    • Posted

      Hi Felina I think we were in touch last July, I have been OK since until 2 days ago. I have had a bad attack and a lot of recital bleeding for the first time. Dr did not seem really concerned and given me two lots af antibiotics, day 2 of liquids but still feeling lousy and pain in left side. , Hope it gets better soon.
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  • Posted

    Just checking in to say I hope today finds you just a little bit better.  There are no leaps - just small steps, and it does take awhile.  I know you think this is a lifetime endurance test, but it does get better.  You will always have to be aware of your diet and of what your body is telling you, but hopefully, you will be aware of the symptoms early on if it happens again and be able to control it by just going to a liquid/soft diet for a few days.  It's been 4 weeks since my attack and it has just been the last few days I have started feeling somewhat normal.  The attack, the meds, and the anxiety take a real toll.  Try to be patient with yourself and you will get there!  Prayers and good thought for you today!  

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    • Posted

      I have just woken up to find this welcome reply. Actually was just wondering when I will start to feel better . Still feel  lousy, especially in the mornings. I've been home from hospital 4 days. I'm still not able to do anything, and certainly couldn't leave the house. Not much appetite, if any. Is all of her his normal? 

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  • Posted

    Sure wish I had a good answer to this  After feeling really good for 3 days, I had a pretty bad day today.  Not with the div. disease, but with, I think, the anxiety that goes along with it and worry about what to do to keep it from happening again.  I get real weak feelings and my head feels heavy..  Usually goes away in a while, but come back in waves.  Trying to make it until after Christmas to go to doctor about it as I'm suppose to travel over the holidays, and I don't want to be on anything new.  I can handle it, just don't like it.  I guess I will just be thankful for good days.  If you have only been home for 4 days after a pretty lengthy stay in the hospital, I would expect you to be pretty tired and weak.  If you can, just try to lay around and do what you feel like.  

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    • Posted

      Yes dee that's exactly what I'm doing, can't do anything else at the moment. Feel very wiped out. I understand about the anxiety too. I have health anxiety already, since I lost a little daughter to cancer in 1989.long time ago but something you never get over. I find it very anxiety inducing to be ill . Not for myself, but for  my family, who worry about me.  As soon as I feel better I will feel less anxious, but, like you I will be worried about it coming back. Vicious circle. Thanks again for this support. 

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    • Posted

      Also, could I ask if anyone still has lingering nausea, mine is in morning when my bowel is active, also, when do you have a normal bowel movement . Mine ore still very thin and not much is there. Sorry form the too much information. 
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    • Posted

      I have been having nausea for most time in the past 4 weeks. I thought once the antibiotics were done I would heal. All my tests are negative but I was on them before Ct scan. Have history of diverticulitis. Recovery was never this long. I take probiotics, Ibgard vit d. Was put on bentyl today to help with the abdominal spasms. I'm thinking the brain gut is in overdrive. I try meditation but relief eludes me. Will be going to gastroenterologist tomorrow. I know I have anxiety but that seems to get better when I have a break from the spasms and nausea. It's very depressing

       

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    • Posted

      Sorry bonnie I didn't see this before. I've been out of hospital 2 weeks today and can't see much improvement at all. Rang specialist because some days I literally went to the loo 15 times a day with those mushy ( sorry too much info) poohs. He suggested mebeverine. It is helping but now I'm worried about constipation because I know this is a side effect and that's bad for diverticulitis. He also suggestbenefibre a gentle laxative, so taking that as well. Very fed up. Seeing him for follow up Wednesday thank goodness. I'm still so terribly weak and have very sore back when upright. 

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