Diverticulitis - Diverticulosis Flare up or not
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Im not new on here, I love this site, has helped me stay sane knowing I’m not alone. But right now I could really use some help, advice. Am I having a Flare up or not. I was diagnosed in Feb 2018 with diverticulitis and small abscess,did one month antibiotics and probiotics,all the right things as far as diet. But developed major anxiety and panic, was afraid to eat anything lost 34 lbs, but got better and was diagnosed with just Diverticulosis, now 4 months out I have major diarrhea, nausea, lower back pain left side along with burning feeling and twinges in lower ab. No fever, no blood in stools just mucus. Went on the whole liquid, soft diet , but no relief. My blood work, Can Scan, Endoscopy are all normal no signs of flare up. No C-diff , tomorrow I see my Dr, to do full stool tests to rule out IBS, Candida, SUDD, and going to insist on colonoscopy. But in the meantime I’m suffering and so worried, any advice on what to do would be great, or has anyone else experienced this? What helps with the diarrhea, the eating is the hardest, doesn’t matter what I eat still goes right through me, Does anyone use GSE, Collagen, Aloe Vera Juice, Golden Milk, probiotics? Please let me know kinds and how much a day.? There is so much advice out there it’s so confusing what to use or not to use. Ty
1 like, 18 replies
gregf323 vickie47128
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bev16241 vickie47128
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Hi there, I can totally emoathise with you I have been ill for a month four hospital stays, so many antibiotics, home now on low residue diet still in inflamation pain, drugs play havoc with our stomachs and the anxiety about eating is just horrible, I now have a plan with my Dr here in England. Using a traffic light system, red pain and discomfort, go on liquid diet.
Amber Left hand feeling shivery and not well go and have a blood test which checks infection and inflamation markers I get the result back the next day, green if in infection straight to A and E, it is possible to have diverticular pain without infection. I have just bought a current book coping with diverticulits ( soothe and heal your gut ) Peter Cartwright. Found this very helpful, also have you tried mindfulness its supposed to destress you which inthink helps. I didnt realse cheese was not good for our stomachs, I have just started on 5ml of Aloe Vera Juice which is good for imflamation. I think this site is great to I am 54 and have had this disease for 20years it has now progressed to abcesses and bleeding and is now fulmblown diverticulitis all very confusing. Hope this helps good luck 🙂
vickie47128 bev16241
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linda18628 bev16241
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lyn98093 vickie47128
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vickie47128 lyn98093
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lyn98093 vickie47128
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I don't know whether slippery elm and aloe vera can be taken together Vickie. I also take a peppermint oil tablet once a day. Although I have had the diarrhoea a long time, my stomach seems more comfortable since taking these supplements. Like you I am so wary about what I eat it is so frustrating!
glenda_82112 vickie47128
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Welcome to the world of diverticulitis. I finally had open sigmoid colectomy surgery and am free of all your experiencing. It's an option to have explored.
vickie47128 glenda_82112
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Scared to go that route , but will definitely do it if needed. Glad you are better. 😉
madeline27614 vickie47128
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When I had diarrhea caused from antibiotics I took the probiotic Florestor. It really helped balance my system.
I think a colonoscopy may be what u must insist on.
I know if a woman who has many if your symptoms with non of the above but has pain too! She said she thinks her doctors think she has gone crazy. So I understand your frustration. Prayers for answers.🙏
vickie47128 madeline27614
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madeline27614 vickie47128
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Good luck and keep us posted. It’s frustrating and fearful but it’s all about managing this disease.🤗
jenny42127 vickie47128
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Mucus is tough..I'll sometimes have it also for weeks on end..I have used Align in the past and can reccomend that. Its pricey, but seemed to work well. What if you stuck with a simple diet for a few days..Scrambled eggs, dry toast, chix broth, beef broth,teas, cold pops, probiotoc yogurt, jello, clear fruit juices..Have you tried that and not seen inprvment? I think insisting on a colonscopy, stool test, maybe blood work would be best too..Not sure your age, but Im seeing my OB soon to have them look at my scans and results so make sure there isnt any connection to thise organs making things worse..
jenny42127
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Has anyone heard of Paul De'Arco tea? Ive also tried that. Not sure if it was coincidence but I got over my last flare soon after having a few cups of that..
vickie47128 jenny42127
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Cannot do eggs or dairy, I stick with cream of wheat white toast, pancakes, potatoes 🥔 🍠 yams, beef or chicken bone broth, rice, spinach, soup and crackers, salmon , carrots and canned fruit or smoothies. I do a variety of teas and 1cp coffee a day. Plus Aloe Vera Juice daily. I will definitely try Align, thank you. I bought a DD pain free foods book, but don’t like it, so I am going to try Low FodMat diet. Along with some GSE
vickie47128 jenny42127
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vickie47128
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jenny42127 vickie47128
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I bought my paul d'Arco tea on amazon, research it