Diverticulitis flare up

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How do you know if your having a flare up? I was diagnosed in Feb with diverticulitis with abscess, did 3 rounds of antibiotics 2 rounds at home and 1in hospital. In April just now have diverticulosis, lost 32 lbs and developed bad anxiety/panic attacks and depression. They have me on Xanax. I’ve been eating all the right foods and keep a food journal, but past week I’ve been nauseous, diarrhea, pains and twitches in lower left ab , my labs are all normal and waiting on Cat Scan results. How do you know if it’s a flare up, and what do you do? Pls any advice. 

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  • Posted

    Hi, for me you are describing the beggining of a flare up. You always hope its not that, but it ends up being just another episode. If pain its intense go to the Dr. Seek answers. You don't want a pocket to burst.

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  • Posted

    Hello!

    Sorry you are feeling poorly! I am six months out from a second flare in 7 years.  It's a horrible condition! I got 2 doctors opinions to consider surgery, both were on the fence (I am in the US, surgery is performed more frequently here for DD)  After a colonoscopy, we decided to treat conservatively and not do surgery at this time.  I still have mini-flares like you are describing, but no fever.  Keep to fluids only for a few days, broth with collagen/gelatin peptides with some turmeric always makes me feel better. NO RAW ANYTHING!   I don't eat wheat, and only very little dairy.  I start the morning now with Benefiber and 2 big glasses of water (24oz total).  Drinking lots more all day.  I take a probiotic each day, and an enzyme tablet with each meal.  I believe I lack my own proper enzymes to digest my food and that causes the flare up in the colon; it is unable to handle partially digested food and is very easily irritated after the DD flare.  Both docs I saw said it's common to develop IBS along with the DD.  Lately I've had heartburn and take the low-dose Pecid AC and it has calmed everything down, including DD twinges!  I don't want to keep taking it, so I will have to ask my doc for some guidance.  Ultimately, each of us is unique and it's up to us to listen to our body.  I hope you find what works for you, seems to take forever to heal from these attacks!

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  • Posted

    While your waiting results try a warm heating pad on abdomen and do you have Bentyl? It’s a prescription anti spasmodic medication.  If you don’t have it ask for it?

    Also with all those antibiotics you should be taking a probiotic.  Your intestines are really working double duty and you need to get them back to normal.

    Eat very light.  But eat crackers, tea and soft foods .  Nothing heavy and xanex is good for anxiety.  Stay on this site.  We have walked in your shoes.🙏😘

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    • Posted

      Was on probiotics but not now, to many to choose from dont know which to take on a daily basis. And I had to quit dairy. So dont do yogurt. I heard GSE is good. ? Just so frustrating this disease. I was getting better, i thought. Eating real good. Doing all right things ugh
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  • Posted

    Hi Vickie,

    I had a few different types of flare ups. The most common was the general discomfort on my left side with a few sharp twinges here and there like someone was poking me with a sharp object. The other type would just hit me all of sudden whether I was sitting, walking or slepping and the pain was horrific. Felt like someone stabbed be with a knife and it would just drop me to the ground.

    In addition to my lighter flare ups, my bowel movements were off going from constipation to very loose, but that was not always the case.

    Once I noticed a flare up, I went on a liquid diet immediately for 2-3 days to give my colon a rest.  I would then goto a low residue diet for a week or so, eating smaller portions throughout the day. 

    In some cases it helped, in other cases my flare up didn’t go away and I ended up in the hospital 3-4 times in a six month period.

    My white blood cell was threw the roof the last time I had it, which put me in the hospital for about 5 days. Be careful and don’t wait too  long to see a doctor if it’s not going away.

    In the end...about 7 weeks after my last flare up, I had surgery. They removed a little over a foot of my colon. That was on 3/22/18. It’s not a cure all and 15% if people will have recurrences after surgery...hoping I’m not on of them. However, this is the longest I have gone without a flare up, which has been great. 

    I’m not one to push surgery, avoid it if you can, but sometimes it’s the only option. When he removed part of my colon, he said he noticed I was already having another episode, which I knew I was just a few days going into my surgery. 

    There is a lot of info on this forum that may be able to help you. Everyone’s pain and symptoms are not always the same. Please continue to check with your doctor. I know there isn’t a lot about this disease out there, so these forums can be of great help. I also utilized the mayoclinic.org site for some info. Just type diverticulitus or diverticulosis in the search bar. 

    I wish you all the best!

    Rodney

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    • Posted

      Ty and prayers to you. My labs are normal just waiting on cat scan results, I did liquid diet for 48hrs now on soft food. I heard GSE is good to use so going to go get some. I was on probiotics during the antibiotics, but don't take anymore. This is just so frustrating, not knowing.

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  • Posted

    Sounds like you need to look into surgery. I lived like that  for 18 months, 14+ attacks and constantly on the antibiotics.  Right now I'm 3 weeks out of surgery.  I was told that 1 more attack would've killed me. Yes the surgery is excruciating pain, but I would rather live a normal life.  The pain of surgery doesn't compare to the lifestyle and pain of Diverticulitis. 

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    • Posted

      Ugh hope your recovering well. Get better soon. To scared of the surgery. This will be my first flare up. Been dealing for 4 months. Got better, so hope its not a flare up. Plus been off work due to it all and dealing with the anxiety/ panic disorder it all caused.
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