8 Replies

  • Posted

    I figured if this was a main post, people would see the link and be able to get straight in without trawling through the replies on other posts!
  • Posted

    Thank you Felinia for this info. I have started to read through the historical content, and when I feel good again, I shall take notes for my ‘diary/notebook’. I still struggle with knowing when I am heading for a flare up, or whether I am actually suffering from DD! I see people say they have several flare ups a year, when I seem to have one every few weeks......not so much the terrible pain, (as I had on Boxing Day 2017), but more often, sudden attacks of watery diarrhoea which lasts for several days.

    i seem to be on almost permanent liquid diet, which doesn’t help my energy levels, (at 76years old, I need energy, haha). Anyway, I’m only off-loading.....I do find all your info and replies to other members really interesting, thank you.

    Best wishes, 

    Aileen

    • Posted

      I think like you a lot of people struggle to tell the difference between an attack of diverticulitis, (when you have the infection, temperature, chills, the whole works and need the antibiotics/hospital etc), and when you just have niggling pain, (which could be from healing or inflammation without infection), plus altered bowel habits.  My doctor is no longer prescribing medication unless there is clear evidence of infection, due to concerns about antibiotic resistance.  I was told it could take a year for the pain to subside - in fact it took 10 months, and I still get the odd niggle.

      Sounds to me like you need the food diary to work out what foods are causing your runs.  But if you are mainly on liquids, there's not a lot going in to bulk up the stools.  I do have quite a few meal replacement drinks when I'm on the liquids only, as they contain all the essential vitamins and minerals.  I just have to watch my sugar levels.

    • Posted

      Thank you so much for your reply, you have told me more in those few short lines than my (numerous) GPs who I have to discuss my DD with. Are you in U.K. Felinia, I’m wondering whether suitable replacement meal drinks are available in UK

      Many Thanks

    • Posted

      Yes, I live in Devon.  There is the old people's friend, Complan.  My Nan used to have that, and it's still around.  When my father was in hospital he too was given meal replacement drinks.  I also have the occasional SlimFast - I get the can of powder and mix it with skimmed milk - it works out cheaper than buying the pre-made-up bottles.  Tesco do their own version as well, called Ultra Slim.  I'm overweight, but as I said, I limit them to watch my sugar levels.  I don't know if others on this forum take them, no doubt real food is better, but at least I know I'm getting the nutrients.

    • Posted

      I wish that I could have these meal replacement drinks but I have

      very bad IBS too and they give me pain and diarhea.

      Have you noticed that all these replacement meals contain maltodextrin

      Which has no nutritional benefits and is very bad for you .

      Any thoughts on consuming this ? From what I've read I avoid it .

    • Posted

      It seems virtually everything contains maltodextrin these days in the UK.  Here are just a few things I've found: 

      Acidophilus with pectin (sorry Jacqueline your probiotic of choice has it)

      MullerLight yogurts (loved by Slimming World which is also one of the methods of losing weight for diabetes, recommended by dieticians)

      Most low fat/diet foods, Canned fruits, Snacks, Cereals, Desserts, Instant pudding, Sauces, Salad dressings, Splenda, to name but a few. 

      Other additives to avoid:  Xanthan gum, High fructose corn syrup, Soy lecithin, Guar gum, Aspartamate, Stevia.  All have been shown to have side effects and some can be carcinogenic.

      The article went on to say: "eat foods that are in their most original form (vegetables, fruits, lean proteins, healthy fats and oils), and avoid all foods with ingredient lists that contain items you don’t recognize".  Which says to me avoid virtually everything which is packaged.  And even organic unpackaged food you don't know if it's been contaminated by sprays/pesticides on adjacent land, or blown in by the wind, or where the pollinators have been before the organic field.

      It's a minefield!!

       

  • Posted

    Hello Linda ,,,a 4 year delay .

    How are you now ?You must be lots better .It's probably taken you 4 years to sort through

    that enormous list of DO NOT's, Hope you haven't starved to death by the lack of food

    you could not eat .

    I took Acidophilis from when found it ,and never looked back,,, ever ,,,My Divi calmed down.

    abcess . and all the tweaks and fright moments , I weaned off the Acid ----- and now take nothing ,just the

    occasional shot of Lactulose , to keep everything heading for the "back door."

    Jacqueline

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.