dizziness and nausea

Posted , 6 users are following.

well folks my consultant put me on topomirate for the dizziness made me really ill ive been like this now 18mths feels as if my life is over i am now on propanalol which are no help at all so fed up of being this way its made me virtually housebound really feel id be better off out of it its a hell of a thing its taken all my confidence with it and ive seen ent neuros audiologists and no1 as helped this cant go on for the rest of my life surely 😣😣😣

0 likes, 15 replies

Report / Delete

15 Replies

Next
  • Posted

    Oh, I hated topomax, that stuff was awful and actually made the dizziness more constant for me. I can understand your frustration, I have been going through it for just over a year and didn't get a diagnosis at all until end of September. Have you been diagnosed with anything or are you still seeing specialists to narrow it down?
    Report / Delete Reply
    • Posted

      manda i thought i was on my way out they made me feel 100 times worse and didnt think i could feel worse what they say it is with youi think they should look further into ppl being giddy i know its not life threatning but its so hard to live day by day with it x
      Report / Delete Reply
  • Posted

    I know this how you feel but you really must keep going to drs until you find the right one...............what testing was done????
    Report / Delete Reply
    • Posted

      So have you only seen an ENT or have you seen a neurologist? Have you had an MRI or x rays done? Also, do you have any past history of neck problems? It can be as simple as always sore and achy to a past car accident or injury.
      Report / Delete Reply
    • Posted

      Hi alison........Yeah I feel the same way about migraines since they say I have vestibular migranes........as far as I was told it can come from ear or brain.....DONT LOSE FAITH......I just started doing some of my vestibular exercises which seems to be helping.........but in my mind we still dont know root of problem and honestly I feel my doctor is guessing now....the meds were working and now they seem to be wearing off to some degree.....some days are really not good........dr put in for a cervical MRI......another ent on ddec 30th....all I want to do is go get my nails and toes done and not think about this anymore
      Report / Delete Reply
    • Posted

      ive seen ent mri scans you name it ive had it i have wear and tare in my neck c5 vertabrae but they tell me thas not the problem ive had stemetil serc avoline netahistine amtryptilene nortriptylene topimaz prpanolol and none of them have done any good im at the end of my tether really had enough ive paid to see a neuro i paid to see a homeopath have tried spiritual healing and acupuncture just never ending x
      Report / Delete Reply
    • Posted

      Just to put it into perspective, it turned out after more than 10 months of testing and medications that a simple x ray revealed that I had lost 40 degrees of curve in my neck so my C1/atlas was putting pressure on my brain stem and by proxy the cerebellum (that's your balance and motor skills go figure) and this was visible on the CT scan, the MRI and the second MRI with MRAs that I did but thats not the kind of thing that neurologist look for. I could have been diagnosed in the first month had it been something they look for so you may want to get the opinion of a chiropractor or even a regular, medical doctor or a medical massage clinic with that same information about your c5.

      I was mad that no one bothered looking at it before but I was so relieved that I could stop all the medication wreaking havoc on my body that I let it go.

      Report / Delete Reply
    • Posted

      so happy for you.....my neurologist..headache specialist just put in for a cervical neck MRI ....I was reading about it on line.......to see if anything shows up..........they did a CT scan last year all was good   several doctors looked at it.....What are they going to do for you now to help the situation.....so happy for you....Hopefully we will all move in your direction.....finding out whats wrong
      Report / Delete Reply
    • Posted

      Oh yes, I remember all the tests and blood work over 10 months, all of which came out just fine. I got diagnosed at the end of September with a treatment plan of 3 months of the following: 3 chiropractic adjustments per week, 2 massage thereapy sessions per week and 1 physical therapy appointment per week. However, I am unable to start until next week as my company's peak season is October through December. However, I have been doing 1 chiropractic adjustment and 1 massage therapy session once a week to help manage it in the meantime as it turned out I was a more severe case then they first thought and there was one day per week where we had enough staffing for me to leave a little early and get these treatments. I started them at the end of September and didn't notice any changes in my symptoms at first but then in mid November we finally turned a corner and I started noticing a difference in the frequency of my symptoms each day. I'm glad that I started going once a week before my treatment starts because I think I will get more out of the aggressive schedule if I'm already showing improvement before we start.
      Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up