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I am 35 year old male in fairly healthy condition. No major problems in my life other than moderate Asthma and chronic sinusitis. Over 2.5yrs ago I started to feel a little “off” as far as foggy brain and sometimes feeling like I could pass out at any moment, It felt like my brain wanted to shut down. Other very mild symptoms were some middle dizziness, hard time focusing, vision at times felt a little blurry. This seemed to start after the summer of 2016 where I had 2 separate incidents (May and October) at a music festival where I passed out while on cocaine and ecstasy. I’m not a hard core drug user but I do enjoy from time to time. Please don’t judge all this on this one little detail. I do not have a drug problem and I know that. My friends and fiance can attest to that. But I do wonder if this problem I’m experiencing spawns from that. The medical staff that I woke up to didn’t seem too concerned but some of my friends/witnesses think I had a seizure (some shaking and eyes rolled back). They checked my blood sugar level and I got up and walked out on my own after about a ½ hour without being checked on. I learned later from research that a cocaine induced seizure is possible. What actually happened to me? I’ll never know for sure.
I felt fine into the fall of 2016 then I started feeling off most of the time. This “feeling a bit off” continued sporadically for about a year until it started becoming a little more regular and sometimes intense in the winter of 2017. Symptoms included mild brain fogginess, tired all the time and wanting to sleep most of the time. It mostly seemed like a constant fatigue with some light headedness. During this time my exercise level was fairly low, snowboarding from time to time and the occasional hike. I lived in the mountains at the time and my living situation was stressful and un-enjoyable.
I spent most of 2018 spring and summer feeling this way but always assumed I just wasn’t getting very much exercise and battling fatigue. All this time I also had no smell, battled allergies daily and stuffed up most of the time. I’ve also most of my life had a hard time getting regular sleep. 4ish hours a night was a regular thing.
Late summer 2018 is when I started to really feel the symptoms getting worse and a lot heavier. After traveling to Spain in September for 2 weeks, I got home and went to the doctor with complaints of:
sensitivity to light and sound
the sensation of weightlessness and moving to fast when sitting still
headaches and neck aches every day
feeling of losing consciousness
ringing in ears
pressure in my head/temples and sinuses
At the time I was seeing a medi-cal doctor and his first thought it was my sinuses so we tried lots of steroids, 3 different antibiotics, 2 blood tests (both came back with no problems), diet change, sleep pattern change and a CT scan that showed my sinuses were completely backed up. In November of 2018 I switched to Kaiser network and started seeing an ENT that confirmed I had major nasal polyps that we had removed with endoscopic surgery on 1/2/19. I also had allergy tests done which all came back very mild to all allergens. My fiance and I were in high hopes that this was the answer to the problem. After the surgery the ENT told me they didn’t think this was causing the dizziness and other symptoms and referred me to a Balance specialist. For 2 months now I’ve been working with them to do physical therapy to correct what they believe to be an imbalance with my vestibular system. So far no changes and my symptoms are getting worse and more intense everyday.
For the last few weeks I’ve actually been feeling the sensation of things being out of place. Like for instance, I’ll see my trash can out of the corner of my eye and get the feeling it’s my cat. When I look over, I see the trash can and know that is what it was the whole time. Blind spots and blanking out are regular feelings now. I’m also experiencing heavy sensitivity to light and sounds. Piercing/loud sounds are startalling. My ENT told me they are at the end of their knowledge on this topic but he did do some research and suggested I might have a form of silent migraines (migraines without pain but experience persistent migraine auras). He suggested to look into this and he updated my GP with this theory and situation. A quick research on the internet returned several reads about Persistent Migraine Aura (PMA) that explains most of the symptoms I have.
I’ve been asking the doctors over and over if it could be a neurological problem. This past week I went to my GP and went over the latest details including the migraine idea. My GP quickly dismissed this idea as he had never heard of such a thing. Very frustrated at this point I asked again if this could be neurological and explained the recent audio/visual sensations I’ve been seeing and he called the Neruo department and they ordered an MRI. They said they want to rule out any organic diseases and if that comes back clean then they want me to see a phyciatrist. They want me to see a phyciatrist because of the recent “hallucinations”. I really don’t think that this is a mental issue, as it is so physical in nature. Am I wrong? My doctor didn’t do a good job of explaining why they think this. So I’m suppose to go talk to someone about all this, but in the meantime my physical symptoms are getting worse. I can’t even get up and walk down the hallway to the bathroom without feeling dizzy and the sensation of going to fall over.
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