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Dizziness, Brain Fog, Insomnia for 2 months.. please help

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keith0612
keith0612

Hi everyone,

After a trip to Geneva in early June, I started to have this unusual dizziness that has lasted up till now. It is not vertigo which I know is room spinning. Instead, it started out as a rocking/swaying sensation which I felt in my body. It was constant from the time I woke up to the time I went to bed.

Around the 3rd week, the rocking/swaying body sensation stopped and was replaced with a constant sensation that my surroundings is tilted. Up till now, I am still having this sensation. It is difficult for me to explain, but it is like I am seeing that the room is always tilted to one side (sometimes left or right, but mostly forward). It does not matter which direction I look at. When I turn my head, my vision and brain automatically adjusts and feels that the room is tilted forward in the direction I am looking at.

Yet this has neither affected my walking nor caused me to fall. It is not worse when I walk or run or move my head, but it is constantly there, even when I sit down or lie down. 

I have seen an ENT doctor who diagnosed me with vestibular neuritis and gave me a course of steroids, betaserc and flunarizine to take for the dizziness. However, the dizziness has not improved. Ever since I started the steroids and betaserc in week 5 (which I have now stopped), I have also started experiencing this constant 24/7 brain fog. I have been having constant problems concentrating, thinking, doing cognitive tasks, remembering things, so much so that it has affected my ability to converse with people, or listen to my lecturer or tutor talk (I am a student). I have never had any problems with this before. This brain fog has been with me ever since it started and has not let up for even 1 moment. It is getting harder and harder for me to cope with my studying and even my normal life because of this..

Since week 5, I have also been having insomnia. My sleep is terrible now and is unrefreshing. I will wake up 2 hours before I need to every day, leaving me extremely tired. Yet, I do not feel sleepy in the day.

I have seen multiple doctors for this, including another ENT doctor, a neurologist, and an opthalmologist. I have also done 2 MRIs, a VNG, ENG, VEMP, eye checks, lumbar puncture (the neurologist suspected encephalitis), EEG and nerve conduction studies, which have all come back normal. The VNG was surprisingly normal which showed that I definitely did not have vestibular neuritis. I also did a posturography test which did show that I have problems balancing (I fell backwards while doing the test, which is consistent with my constant visual sensation that my surroundings are tilted forward.

Please let me know if you have experienced this before, or if you have any idea what it is. I am currently inclined to think that it is not a vestibular problem, but a deficiency of some sort that is causing these unusual symptoms. Please also let me know if there any medications you have tried that have relieved your brain fog, as this is affecting me greatly right now.

Thanks.. 

0 likes, 2 replies

2 Replies

  • Jon8181
    Jon8181 keith0612

    Posted

    Keith, I can associate with some of what you are experiencing. I've been diagnosed having White Brain Matter Disease. I deal with dizziness, balance issues and severe headaches everyday, 24/7. I believe it's due to my White Brain Matter Disease. Mine does affect my mobility. I went from using a cane to a walker. Mine has been going on for almost 2 years but I also fall down. The way I describe mine, it's like when you are falling in a dream, it's not exactly like that but it's the only way I can describe my dizziness. I quit watching television over a year ago because I can't focus. My Neurologist found my White Brain Matter Disease while doing an MRI. I don't have an appointment with a ENT specialist next month, I've had to wait 6 months for this appointment. Currently I don't take any medication for my disorder, but I sure can relate. I think I've seen 5 different Neurologists and each one says something different.

  • keith0612
    keith0612

    Posted

    Does anyone have any idea about what I am experiencing? Please help...

     

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