Posted , 8 users are following.
Hi members does anyone experience dizziness foggy head and slight nausea quite often that does not become an attack. Just constantly there a lot of my days. I'm beginning to overdo the Stemetil I think. Anyone else experience this and if so what remedy do you use. Thanks
0 likes, 22 replies
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sezzp maria77273
Posted
I was constantly dizzy, with the unpredictable more extreme attacks thrown in, until I was prescribed betahistine. Now I will have attacks but feel fine inbetween. I now have constant tinnitus though, which is driving me crazy atm. I'm trying ginger tea and I am eating only natural foods atm, to ensure that my salt intake is minimal. Hope you're feeling better soon!
maria77273 sezzp
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sezzp maria77273
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I get very few now. One or 2 a month that are so bad that I need to sit down while I wait for it to ease. I haven't had one that meant I needed to lie down for months now. The lie down ones would last hours, these days when i get an attack its relatively short. Half an hour to 2 hours maybe - really should time them properly! The last few days have been bad tho, between 2 and 5, need to sit down, attacks each day. No idea what i did different to trigger it. My neck and shoulders are sore and crackling as always when I get a flare up.
sezzp
Posted
Also, when I was first on betahistine I was still dizzy all the time. It wasn't until the dose was increased that things improved for me. Maybe worth chatting to your doc about an increase
maria77273 sezzp
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Funny you said that Sezzp. I've just increased the dose myself to 24mg x3. Was in 16x3 will see how it goes.
Bluesmann maria77273
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maria77273 Bluesmann
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Hi Bluesmann trying to think of something I ate maybe but can't pinpoint it. The fullness atm is what makes me dizzy more than anything. Taking my Betahistine and drinking water. Hopefully will pass soon. Been a few days now and have just stayed in bed feeling sorry for myself. Lying down seems to relieve it somewhat.
Bluesmann maria77273
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maria77273 Bluesmann
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barry61472 maria77273
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maria77273 barry61472
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Thanks Barry unfortunately ATM mine doesn't pass. I go to bed with it and wake up with it.
suzanne_96353 maria77273
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tanney maria77273
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Hi Maria. Sounds like you may need to have vestibular rehab. I was having similar symptoms to yours, saw a neurotologlist and he prescribed the rehab. I am currently in my 5th week of vestibular rehab and I'm noticing that the fogginess, unbalance, nauseous feelings are almost gone.
Meniere's Disease does terrible things to the vestibular (balance) system and left unchecked will tend to get worse. I highly recommend rehab to anyone that has MD regardless of the severity of the illness. The rehab is very benign and easy to do. You usually only go once a week but must do the exercises at home every day. Most folks who go through the rehab process will have improvement. The more you do the more significant the progress. Good luck.
maria77273 tanney
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Reena2017 maria77273
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Hi Maria,
Going through the same......nothing seems to work besides just staring at the ceiling or walls as I've had to just lay in bed......i've been getting the steroid shots every few weeks but feel like I'm more tired and worn out after and the last one I had was my 4th injection. I have another one in 3 weeks.....Looking at others responses I have tried Betahistine but didn't have much success. I'm sorry can't give a remedy but can provide u support...To hang in there and be strong there is light at the end of our tunnel.
Reena
maria77273 Reena2017
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lillian44812 maria77273
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Hi Maria, I've had 3 shots. The first one in November, the otologist inserted a deadening agent in the ear then injected 10 mg of dexamethasone into my ear drum. It seemed very successful for the first month or two. Then in February I started having problems again. I went to my ENT and he injected 4 mg. I then had multiple dizzy spells, one while sitting in the movie theater which luckily only lasted a couple of minutes then passed without me getting nauseous or doing what I call the drunken sailor walk. I went back to the otologist the following week and he gave me another 10 mg injection and the next day I had a full blown attack lasting 3 hours with nausea. Since the injection by my ENT I have had 22 attacks lasting from a few seconds to 3 hours. I've been taking meclizine which has helped and am on a low salt diet. I've been keeping a log of what I have been doing prior to the attacks. In many cases, sleep deprivation seems to be a common denominator. My left ear is my problem ear. It is also my best side to sleep. I have been making myself sleep more on my right side in case that was causing more fluid to build up in my left ear. This is such a bizarre condition that doesn't seem to have a magic bullet, but every time I hear someone has found a treatment that has been successful for them, it gives me hope that I too can find something that will finally alleviate this craziness!
As a side note, I went on a week long cruise to Alaska from Seattle and only had one problem with dizziness and nausea when we had some rough seas. Meclizine helped me during that trip.
maria77273 lillian44812
Posted
Oh poor luv. That's a lot of episodes. I think I will just go with the Flo. I can't afford to add to my woes at my age. It's an incredible nasty Desease. Thks for information though. Praying someone will find a cure for all us sufferers.