Dizziness only when sitting down/lying down
Posted , 43 users are following.
I have an inside feeling that i am moving but this only happens when i am not doing anything. Its kind of like like i am on a train moving or an airplane. I am not falling over or losing balance. I cant even watch t.v and just relax. It feels much better when i am moving. It actually feels better when i am driving and doing exercises. This is really annoying and dont know wat to do. I still have a very big appetite but i cant really enjoy the food because of this. I Think the problem is either the neck or the ears. I got blood tested and urine tested( came back normal) and didnt need to do further tests because keeping me in bed. My doctor gave me paxil but i kinda dont want to use it yet because of the side effects. I am so mad because how can you get dizzy when your not doing anything, doesnt make any sense. I just need some advice and if some one could explain what is happening to me.
1 like, 57 replies
rich61575
Posted
AshRose90 rich61575
Posted
I've had a similar off balance sensation for about a year now. I've been told by 2 ENT's that they aren't convinced it's to do with my ears and are positive this isn't a neurological dosorder either.
My main symptoms are a general imbalance, usually better when in a moving vehicle. It appears to come on during meals and lingers. It's particularly noticeable when I'm standing still, like standing in a queue, or within a crowd.
Fortunately, I don't suffer with any nausea or committing but I do panic badly.
At times, my ears (and my head generally) feel stuffy, very slightly achy and my vision is distorted, a little blurred around the edges - like I can't focus properly. My eyes have been checked and my sight is almost perfect. Go figure!
Like you, I've managed to keep my appetite but my anxiety (through all of this) has other ideas!
I don't know how I manage to wake up every day feeling like this but I know I can't go on for much longer. The fatigue is enough to make me give up - I don't believe I've ever been so tired than I have these past 12 months!
Nobody seems to have any idea what this could be so if you have any ideas, I'd be grateful to know. Personally, muscle or joint problems just doesn't fit!
rich61575 AshRose90
Posted
veemae80819 rich61575
Posted
It sounds as if you could have inner ear problems. Have you had a cold or ear infection recently. This can affect the ear resulting in vertigo. Vertigo has different levels of sensation. I suffer from vertigo, tinnitus and migraine and have the sensations you describe. When my vertigo was at its worst the room was spinning and I would fall but now it has settled down with medication my symptoms are milder, although it can get bad at times.
Vertigo can be worse when you lie down or relax the head but it does take time to recover or improve. My symptoms were so bad I had to retire early from work but after five years I am now able to have a good quality of life, although I am still on medication.
Hope you feel well soon.
rich61575 veemae80819
Posted
deni1 rich61575
Posted
vhoang2 rich61575
Posted
Comandosanblas rich61575
Posted
Dizziness started 3 months ago, sometimes with pain in eye. Sometimes the dizzyness turns into a bad vertigo and because of these episodes I went to the ER on 3 ocassions thinking the worst. I've been to the gp, infectologist, ent, cardio, hematologist, neurologist and did all the tests: everything came out optimal. However the neurologist did some check-up and when he touched a specific neck/head muscle I felt an excruciating pain. It results that I had damaged a nerve and had neck and head muscle spasms, which can cause dizzyness, headaches, pulsating temples, and other neurological symptoms.
Google: occipital neuralgia
nikki91997 rich61575
Posted
lisa34431 rich61575
Posted
andy39essex lisa34431
Posted
I've just found this forum thread a.d read your post, whilst I don't have all your symptoms and experiences I do have a lot of them.
Would love to find out more from you as I've not found many people with our type of symptoms.
Have you found anything that helps it?
I noticed the dizziness most when I sitting down say to eat or work at the PC or when I'm standing still, feels like my body is gently swaying.
It's definitely effecting my life, doctor has been good and done the usual bloods, referral to ENT and Neurologist, got various scans booked and I'm just in limbo waiting...
danielle33400 andy39essex
Posted
I have these same symptoms - I work in an Office setting and spend my day sitting in front of the computer. I find this is the worst!! I can be home and be somewhat fine throughout the day - it's sitting that causes it to get gradually worst throughout the day. I've gotten to the point where sometimes I will almost pass out - but I get up and move and I am fine. When this happens my heart beats rapidly and I begin to shake and then it passes!
This has been happening to me for about 5-6 months. I've had a CT - at my request and my doctor recommended a 24 hour holter monitor - I am still waiting on results from that. She also gave me some medication for calcifications - in the event that I had an inner ear infection.
Would love to hear how you guys are working around this or if you/your doctor comes up with some answers! And I will do the same.
andy39essex danielle33400
Posted
I can relate to it being worse when I'm sat in front of PC at work but not when I'm out and about on the move.
I'm current awaiting dates to undergo mri scans on my head and like you had to do a 24hr heart monitor test which has picked up that I've got arythmia....I've got various appointments with specialists scheduled but I'm at a bit miffed what is.
But will update when I have some news
geoff147 rich61575
Posted
I have been suffering exactly the same issues, which started in 2012. This first manifested itself as severe headaches (one specialist suggested I was having cluster headaches). Gradually over several months these diminished but I have been left with the same sitting imbalance/dizziness occurences as descibed by fellow contributors. I have been scanned so many times they could probably build a replica. I have had balance tests, x-rays, neurological referrals, eye tests, vascular tests, mri scans, ENT, diagnosed with Labrinthitis, spinal disorder, this that and the other. Injections in base of spine (actually my a**) with steroid based injection.
ALL scans, tests came back with no issues, in fact the senior neurologist said he would 'die for a spine like mine' after reveiwing the latest neck/head mri scan.
In short - nothing works.
I have been off work for 2 prolonged periods when the imbalance wouldn't calm down, but returned with reduced hours leading back to full time.
Echoing another contribution, I enjoy walking driving - any motion is good and relaxing. Sitting in front of a monitor (I have 2 in front of me) is the worst, watching TV not as bad.
Having more or less given up on finding the medical cause (let alone a solution) but I have found some things which help ME which I will share - but please don't take this a a recommendation - these are things which help ME, and could well have the opposite effect on someone else.
Seating position - believe it or not slouched backwards (like a couch potato) works best for me - I tend to avoid sitting upright - my theory is that there is a compression somewhere which I am avoiding in this 'casual' position.
Stretch the whole body - stand upright and try to make self taller and hold for while (had a read about the Alexander technique on self help).
Minimise rotation movement when seated - for some reason this twisting of the spine/neck is not good for me whien sitting down.
Avoid rapid side to side eye movement - rotate chair (without twisting body) if I want to look to the sides.
I get up and walk around every hour (recommended by health sites), and use a foot rest.
My totally unproven theory is that there is an nerve compression somewhere, could be local to the head or even at base of spine (remember the giddy in head feeling if contacted at base of spine), but in association with this the optic nerve is somehow involved as well; whether this is a direct link, or something 'in the neurological loop' is a just a guess.
Anyway hope this experience is of use, or at least lets you know that you are not alone.
laura14414 rich61575
Posted
patty818 laura14414
Posted