Dizziness way too long.....

Posted , 8 users are following.

Can't believe this is happening to me &/or anyone else.. Awful & the dizzy & spacey head is part of my daily life.  I have been seen by ENT doc, twice & he sent me to neurosurgeon (hve bad neck) after brain mri & Cat scan that doc said he didn't believe prob came from neck.  (get plenty of headaches)  My hope is in the neurologist I will see tomorrow. But who knows.  I am a older person & yrs ago I had BPV but that is not what this is.....I had lunch with my friend today & truthfully was not enjoyable,  I was going through the motions.  I need a diagnosis.  Thanks for listening.  Marie

 

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  • Posted

    i also have a bad neck with bulging neck disc and i certainly think it affects my balance as could possibly be causing vascular problems to blood flow, but i also have recurring BPPV and MAV vertigo as a diagnosis.  Discounting neck problems is unhelpful as i think it does play a part.
    • Posted

      Hi Anne ,been having heck of a problem with this site ,left it for 2 weeks ,now back on tonight ,here I go again .

         Your still in same position nothing changed ,me to gets you down for sure .

       I was sat outside this morning in the shade ,came over odd ,went into kitchen ,felt like I was going to flake out ,managed to get into where husband was ,told him didn't feel right ,luckily it passed after 15 mins ,been sat quiet rest of day .First time that's ever happened,scary to say the least ,my tinnitus has been bad ,bad of late ,plus the Mdds havoc ,so don't know what that's was all about ,my daughter said tonight ,drop in BP ,she's had it .Hope not something else starting off ,all I want .

        How you managing at work Anne ? You still managing to drive around okay ?Think of you ,even when I'm not on here ,old timers at this ,you know what I mean .xx

    • Posted

      Hi Marlene,

      I'm new here but I have sympathy for anyone with these terrible symtoms.  It causes bad anxiety when things go on & on & never get resolved!

      Take care.

       

    • Posted

      Hi Marlene,  sorry you've been feeling rough.  My tinnitus has been on high for a while now too.  I've recently bought my own BP machine as mine was quite high when the GP checked it recently but i told him that's cos i get anxious at the doctors.  Been checking it myself and it's pretty good, but always have a high pulse which i think is normal for me.  i've had a few other health problems lately and thankfully been feeling much better on the dizzy front, which is good as I was totally inside an MRI scanner yesterday for another investigation for a gyane problem.  They infused a dye into me towards the end of an hour of imaging and i felt as though i were going to pass out but managed to get through it.   I got out of the scanner though and i was all over the place cos' the sound it makes affects ears and the IV infusion made me feel sick. 

      I've been OK with my driving but had a chat with Occupational Health who said i should be assigned to desk duties if i feel unable to drive.  If i felt unable to drive then i wouldn't drive but it's good to know i have that to fall back on if i'm having a real dizzy day.

      This past month i feel with all the other problems i have going on, possible kidney infection and gynae problem that i have gone past my sell by date, thankfully feeling OK on the dizzies past few weeks, but that is so unpredictable i enjoy the good days/weeks when i get them and try not to worry about when it might next kick off again,

      Take care and when you feel like you're going to flake out try to remember to take lots of deep breaths to get more oxygen circulating and also lie down before you collapse.  Always good advice to avoid causing further injury.  xx

       

    • Posted

      Hello Marie ,glad you found this site ,got lots on it ,no doubt you've had a good look at the various threads on health issues ,females are good at finding out answers ,or they go looking for the help ,then place them up on this site .So fair choice of ailments to look at .

         I'm the same as Gillian ,had this now for 4 yrs ,Anne and Travis fairly long time also ,miseable condition to be dealing with .Stay looking in .Regards 

    • Posted

      Hi Anne ,sorry about your problems to ,like you I've got the Gyne going on as well ,uncomfortable every day ,had couple check ups done ,See how this white coat has an affect on females ,terrible ,but if it was my daughter ,Im straight on her case ,that was a long MRI job ,when do you get those results ,think the waiting is horrendous .Let me know how things went ,don't forget .

         That MRI machine is noisy ,if you've got tinnitus and have to go in it ,the bang ,bang of it ,25 mins was ample enough ,so take my hat of to you for doing an hour.

         Id take the surgerys offer up on a desk job ,especially when not balancing so good .they say this Mdds can go ,but not holding my breath after 4 yrs of having it ,like you still have this really painful neck ache ,put cold bag of peas on it regularly to ease it off ,They got you on antibiotic for kidney infection ,? Your not in good place by sounds of it Anne .

         Still think my neck can be at the root of my balance ,ever since I had that osteopath visit that Saturday for my sinuses ,he tweaked my neck out ,plus I had those bones out  maybe he done that at same time .No way to prove that now ,but hey look at mess it's left me alone in .

        We've all had neck probs with the balance ,and we're all still in the dark ,one girl I know has just been told she has Graves ,she has balance trouble ,sad ,but least now she has her diagnosis ,Wish someone had the answer for all of us .

        Hope I get no more probs of this site ,wonder how Darrens doing Anne ,did look for him ,hope he's doing good ,seemed happier last time we spoke ,his varifocals and all .

         Yes Anne I should lay down never had that as such  but I did feel quite odd ,scary it was ,must eat something my daughter said get my sugar up first thing ,as I hate to eat breakfast ,so a banana I could just about manage .

        Happy Days Anne ,forgot what those were ,don't we all I hear you say 😛X X 

    • Posted

      Hi Marlene

      i'm just off to work.  I struggle to eat breakfast too, not a breakfast person either but could probably manage half a banana if pushedsmile  YOur daughters right though, we should really eat breakfast.

      I totally understand how you feel about the osteopath, cos' it was about one week after having some physio for my neck 2 years ago that all my balance problem started.  As you say i can't prove it but it seems a big co-incidence.

    • Posted

      Hi Anne ,hope your work day went okay ,soon be retired ,just treading water till you stop ,become lady of leisure as myself ,Watching the Tennis ,bag peas on my neck ,looks like rain ,but hey it's Wimbledon fortnight .Least that sun and heat has abated ,hate heat ,sinuses don't like it nor the tinnitus ,today that's low ,so balance way off ,Rocking away as Im sat here ,that only happens if my tinnitus is low and ears are muffled ,so over and in the head hissing today ,not coming out of the ears .

         Saying to my husband how we both went to osteopath and this balance began ,he said got to be something in that ,wonder how many of us got it only after an osteopath ,to much of a coincidence as you've said ,swear he tweaked my neck out ,for those sinuses .Went in on that Saturday fine ,come The Monday I was all over the shop .been this way ever since ,but how can you prove any of it ,but that gut feeling tells me that's what's done this ,even had those 2 bones put back in after that CT scan ,maybe earlier scan  may have sorted this ,who knows Anne .Always had neck ache since that virus kicked everything off .Regrets like going to that osteopath .Not forgetting this damn anxiety ( Gyne ) IBS came into play at same time ,never had that prob prior in all my years .Yes what a mess ,totally life changing for sure .Sad reading of others having this ,all seem to run the same vein of onset to it .Like Jon saying to Marie ,it's a neck virus ,I agree with that totally as to its starting point .that's the connection in all of us even to the other sites wether it be tinnitus or the balance .

         Well back to Andy Murray ,Im after a Fedderer to win this year ,my all time favourite .got the Tour de France on Saturday Great love that ,only 2 sports I watch .Football big yawn .xx

    • Posted

      Hi Marlene

      many years ago i had a really stiff neck, not what i've got now.  I could barely lift my head up.  I saw a physio who said i probably had a virus in my neck and gave me ultrasound treatment and hey presto it disappeared within days.  Never knew you could get a virus in your neck but that ultrasound treatment really worked.  Lucky old you watching tennis - glad we had a bit of rain today though at work it was getting a bit sticky out there. xx

    • Posted

      Hi Anne ,will ask about the ultra sound on my neck ,maybe get that gone ,be one less thing to contend with daily ,I was like that when I had virus ,couldn't hold my head up ,felt like it was heavy with like dried block of cement inside ,had to hold it up with both hands ,for going on 4 months ,had neck ache ever since .

        Glad today bit cooler ,husband still watered garden ,only had small bit of rain ,had it somewhat up north ,all that lightning .

         Have good restful weekend Anne xx

    • Posted

      An ultrasound on the neck? The actual taking of an ultrasound should not have any affect as it is only looking isn't it? An EMS treatment though would however. As I also have (1) sore neck and (2) a runny nose for some two weeks now (longer than the VN) I shall watch with interest your comments. One gets rather tired of these symptoms very quickly, byes, Jon
    • Posted

      Hi Jon

      got mixed up apologies, not an ultrasound, something to do with a sound like sonar.  I will have to look it up, because it was many years ago, but it definitely worked.

    • Posted

      Hi Jon, yes, i checked it out and it was ultrasound physical therapy.
    • Posted

      Hi again, I'm just glad there was some relief, this is an unrelenting beast at times. Thanks for the update.
    • Posted

      Jon thanks for that ,I've now written it down ,there's an osteopath about 10 properties away ,will ask him .Im again today sat with bag cold peas on my neck watching the tennis ,What a nightmare all this is ,will pass on what Anne and you have said .My next door neighbour ,husband and cousin suffer from these neck aches ,I to suffer from allergies Perrenial ,Anne to has allergies  I've always said its all connected up in some way to the condition were all in .We seem to be the only ones connecting our Dots up out there ,hence years down the track were still as we are .gillian on here in the same sit ,she's been everywhere ,and seen so many drs ,hey Jon ,Gill still in the same place ,no movement ,little wonder why were worn out by this living if you can call it that .Regards Jon 
    • Posted

      Ultrasound is a therapeutic modality that has been used by physical therapists since the 1940s. Ultrasound is applied using a round-headed wand or probe that is put in direct contact with the patient’s skin. Ultrasound gel is used on all surfaces of the head in order to reduce friction and assist in the transmission of the ultrasonic waves. Therapeutic ultrasound is in the frequency range of about 0.8-3.0 MHz.

      The waves are generated by a piezoelectric effect caused by the vibration of crystals within the head of the wand/probe. The sound waves that pass through the skin cause a vibration of the local tissues. This vibration or cavitation can cause a deep heating locally though usually no sensation of heat will be felt by the patient. In situations where a heating effect is not desirable, such as a fresh injury with acute inflammation, the ultrasound can be pulsed rather than continuously transmitted

    • Posted

      That,s what I had  on my neck when it was pretty bad, and no amount of e excises helped.  It worked terrifically.,
    • Posted

      We,ve had this conversation before eh Anne?  Still wish I could get my hands on one !!ha ha. Prob cost an arm and  leg!
    • Posted

      Hi Marlene

      my manager told me at work today that if i have anymore time off with balance/dizzy problems i would need to be seen by human resources for regular meetings as i'd triggered an alert as i've had 3 periods of sickness over 2 years.   I said i have no control over the unpredictability of this condition. As a nurse of 28 years who has never taken a lot of sick leave prior to this i feel a bit like saying 'whatever' but nobody would have even known i'd had any sick leave until i asked to be seen by Occupational Health because of my own concern, it was only then they realised because the managers where i work hadn't been taking much notice of my condition.

    • Posted

      Hi Anne ,just on pad ,well words fail me ,Obvious you'd not had sick time ,for managers not to have noticed before .

        In your profession ,more understanding to this condition should be warranted ,can't sack you  that's the law .3 times off in all that time Anne ,nothing is it .Heavens above .

        Your 28 yrs should count for something ,but apparently not it seems .How long you been with this practise Anne ? Id go get some advice on your situation ,like you've said no pension pay out for fair while .You have the upper hand in this ,as you went forward yourself not them coming to you first ,that's why I say go get advice now .Whats there policy on how much sick leave you can take in say a year .? Got to be written down in any contract they gave you ,yes and read that small print ,hide stuff in that .

         Get it in writing ,about working inside surgery ,as was offered up to you .

        You love your job ,don't just throw in towel .They going to help you pay your bills ,No ,What does your husband say to do.? Do and will they offer up a redundancy package Anne ,check that out .

         I'm sorry they dropped this on you ,cheered your weekend up NOT ,just more thinking for you .

         Hope this lot can get sorted out in your favor ,Don't get pushed around by that lot ,you deserve better after years you've spent caring for others in community .Go check out your options Anne .Most places have Human resources Anne ,is this what you call occupational health ,or along those lines ? Let me know how you get on ,Stress you can well do without ,don't help this condition as you already know .Hug to you Anne .

    • Posted

      Thanks Marlene for your support.  I know it's a bit rich isn't it and i will be taking further advice from my union, if i can ever get hold of them.  With this condition though, like any genuine illness, you can't say to them i won't be off for the next 3 months, because that's a 'target' they set you, not to be off sick for the next 3 months, because i have taken 3 lots of illness with this problem in the past year, once for 4 weeks and 2 other periods of 1 week, so that's 6 weeks in a year.  I will need to find out what it all means, but i am thinking of leaving next year anyway and finding another job with less hours, as i asked to reduce my hours at work some months ago and they said no as they want people who can work full time, that's why i asked to see occupational health myself and that's when they found out i have had 7 weeks off with balance problems.  Anyway i also have an appointment to see a neuro otologist on 22 July so hoping i can get some more information.  As you say i do intend to check out my options but if i go down the route of medical retirement then i would never be able to work in a nursing capacity again i understand and i want to be able to 'carry on nursing' (Ooh Matron) part time if i can.

      Hug to you too. xx

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