Dizziness way too long.....

Hi guys and girls. It would seem to me (I am of the analytical type) that certain conditions do accompany our shared condition.

Yes, sore necks are mentioned far too often for them not to be related.

Yes, whilst rest is essential, getting up and re-training our brain area affected by VN type malodies, in eye/hand/leg movements is also a must and whilst it is shear hard work and at times nausiating, must be endured. Have someone walk with you as a steadier if needed.

Yes. depression is part of the illness as remember, this is a neuro related problem and whilst not definitively explained by our collective learned doctors, is present in most posts you read on this site.

The tendancy to stay in bed, nice warm safe bed, is to be discouraged as it does not help the associated depression of this illness.

So, some are suffering far more than others (I am grateful that mine is just unsteadiness at times) whilst some of you are totally debilitated. I am so sorry but hard as it is to try, find out the eye exercises, do some walking every day and as with all virus borne disceases, drink plenty of water and a simple diet. Get well, please?

Hi Marie, stress certainly opens the front door to our immune system. I forgot to add to my (growing) list of symptoms my runny nose that I have had for the same time, (plus 3 days prior) as my latest bout, that is 5 weeks plus 3 days, WTH? I never have colds for that long and just to top it off whilst I was away last week trying t relax at Surfers Paradise, a [bloody] cold sore. Runny noses (or in some people's cases sinusitis) and cold sores (a known form of virus) are all present in one form or another in the majority of cases that I have read. Once again I say loudly and with feeling "Poor US". But Maria, I am one of the lucky ones where slight improvements come weekly if not daily. I force myself to go for walks focussing both long distance and a metre in front of me (not at the same time of course) and wonder at how good our brain eye coordination was before the onset of our problem. Doing what I call "Throwback" exercise in the safety of your bed certainly brings on the Dizzies but apparently it is worth the short term nausia and tiredness, so a short nap afterwards is warranted. I believe that as we are trying to retrain our brain in recognising the new set of signals from our eyes and ears (vestibular balance) and the brain, the brain is literally building new neuron pathways. Our bodies therefore are reflecting how hard the process is, hence the feeling or tiredness. Add to this that noone seems to truly understand the problem, no wonder we are stressed which of course exacerbates our situation. Thanks for responding to my post, it somehow makes me feel better knowing that someone understands. Warm regards, Jon

Flat on my back again. I hate this. So debilitating. Mri was clear but they didn't do neck and cervical spine just the brain. I suppose that is some comfort but what next? Just resign myself to the fact this is a chronic recurring untreatable condition or continue eliminating other potential causes. I have I think I mentioned a clinically irrelevant underachievement thyroid but who knows..those forums are have interesting cross over symptoms. I really wanted to get out today, a wild and windy day in Norfolk, but here I lay....best wishes to all