Dizzy 24/7 for over 2 WEEKS! NO RELIEF! HELP!

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I'm hysterically sobbing while writing this. I don't know what to do. I've been to mulitple doctors, had extensive blood work done, had an MRI, and all tests are normal! Here are my symptoms: 

- Dizziness 24/7. Hasn't stopped. No relief. 

- Blurry vision. I can't seem to focus in on anything

- Gagging. I gag everytime I go up and down stairs, see a pattern of clothing, carpeting, etc. that's disorientating, also when I use my phone. 

- Tired. Not sure if I'm tired, or just because I can't exercise anymore, and all I want to do is lay in bed since I started getting these symptoms. 

- Forgetfulness. I was driving to work, the same way I've gone every day for the past 2+ years. I was about a mile away, and I forgot where I was. I thought I was lost. 

I don't know what to do anymore. I'm at my wits end. No one is helping me. I'm so broke from all the medical bills! Here is a list of medications and OTCs I take, and have been taking for years: 

- Lexapro, 5mg daily

- Prilosec OTC

- Phillips Probiotic

I was given medication for vertigo to help with the dizziness to take 3x a day for 10 days. It hasn't helped. 

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8 Replies

  • Posted

    I had intense vertigo for four months and a round of every specialist I could think of.  they even suggested MS, which I do not have.  Ended up with a balance doctor and physical therapy.  That got rid of the vertigo.  Seeing a chiropractor now and she has done a lot to help me regain my balance and strength.  Good luck.  I know it's frustrating and scary.
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  • Posted

    Sounds like an inner ear issue. I too have the same thing. I'm on week 4 with it. Have u had ur eyes checked out? Just to rule vision troubles out. Il find a link I read about viral labyrinthitis which is what I have. Patterned wallpaper makes me feel so sick and dizzy. I was dizzy 24/7 for 2.5weeks. Still have bouts of it now. Blurred vision. Nausea. Fatigue.
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    • Posted

      My next step is to see an eye doctor, but I have to pay out of pocket, because I only get 1 eye exam every 2 years. I just had one done about 8 months ago. 

      I did speak with my doctor about Labyrinthitis, but she never said she thought I may have it. That was before she sent me to have an MRI, and it came back clean. I haven't heard back from her about next steps. 

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  • Posted

    Hi

    I just read your post.....sorry you're suffering so much. It really does sound like vestibular neuritis but you need to see an ear specialist. Google it for symptoms. Anxiety makes it worse. I know its a horrible feeling to be dizzy. Been there....twice for much longer periods of time.

    Good Luck,

    Debbie

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    • Posted

      Hi Debbie,

      ​I read your reply and see you have had VN twice.  May I ask how long this lasted each time and if you have any vestibular loss/damage caused from it?  I was told I had 25% unilateral loss.  I have a really hard time trying to drive and it's been four years.  I still get derealization, where I feel like things aren't real and feels like I'm in a dream.  It's scary sometimes because I feel as if I'm trapped inside my body or inside my head.  I hope you're doing better.

      ​Nicole

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  • Posted

    I have mal de debarquement. I feel disoriented as well and have a hard time concentrating. I also always feel like I'm moving when I am sitting or standing. Just a thought. Don't let the anxiety take over. It only makes it worse....regardless of what you have. Best of luck.
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  • Posted

    OK, all who read of your plight sincerely send their best wishes, for we have all been there to a certain degree. I have found no help from doctors as they have either no clue about, or no desire, to truly understand our problem. Furthermore I take no medications as like your experience, none have helped me. Despite my apparent drunk and disorderly gait (walking style) I try to get out on a soft surface (beach or footy field) and just walk as far as I can, this is an absolute must provided you don't fall and hurt yourself, this being my only disclaimer, stay safe. I have had my VN for over two years and embarrassing as it is, I just get out there and exercise. I do a walk up a mountain road of around three kilometres and almost fell over the railing the other night which rather scared me as the drop was substantial, but on I go as feeling at the bottom of our symptoms is just the pits. So, when you get cloudy or wavy vision it is as a result of what is known as silent migraine and the only way I can rid myself of this is lay down and put a pillow over my face and wait for half an hour, that works (for me) every time and as yet, has not suffocated me. Lets remember that the cause of our symptoms is based in our brain and as someone said recently, our brain having to do much more work just to keep our balance during the day when the eyes and ears combination used to do it all before our sickness, well no wonder we are exhausted. Another trick is to cut out entirely our salt intake, as best we can. I just don't add any more but recognise that some foods have heaps in and I try to avoid those. Finally (for the time being, I have a million remedies) drink, drink and more drink, water. I tend to overdo wine but that certainly only helps make me feel ok for a while, but water will definitely help. Do have a cry, we all have, but remember one day, someone is going to make a breakthrough discovery and I just know that it will be reported on this very site, shortly thereafter, that is our combined prayer anyway. Good luck, believe it or not you are in the early stages but you will get better soon, even if just a little day by day, that I promise you. Fond regards, Jonathon x smile
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