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Dizzy and balance issues. Help please!

Posted , 10 users are following.

Dee7777
Dee7777

Hi eberyone.

I posted a while back and had some great advice but I thought I'd update as my situation has changed slightly.

Towards the end of December last year I developed severe dizziness/being unbalanced and uncoordinated. For the first couple of weeks it was so bad to the point I couldn't walk properly and couldn't leave my house.

This gradually eased off a bit and I was almost able to live normally and go back to work. However if I stand up I still sway and need to lean on something but it was much better than it was.

However the last 3 days it's started to come back again. Even when I'm sat down I feel like I'm swaying. I don't understand why it's coming back again.

I have had numerous doctors appointments and they are unsure I had an ENT appointment last week and they have said my ears are fine and it's definitely not anything to do with my ears or my hearing. I'm currently waiting for a Neurolgy appointment. All bloods came back normal and blood pressure is fine.ECG is also normal. Saw an optician who said my eyes are healthy.

This is really getting me down and I have no idea what to do.

My other symptoms have included;

Ghosting vision around items, especially as I get more tired and especially when I look at light text on a dark background.

More floaters.

Some weakness in my face and arms (this has failed off majorly in the last month)

Constant feeling as if I'm moving, as opposed to the world spinning. Sometimes I actually do sway when I'm standing or sitting and I cannot stop no matter what I do.

My eyes find it hard to keep up with things, like fast moving text on a screen or fast scenes on TV.

Please note most of these symptoms do not come and go, they are always there.

Could anyone shead some light on what this could be? I can't have this dizziness come back just when I felt I was starting to be able to live my life again.

Thanks for reading

0 likes, 29 replies

29 Replies

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  • Waffalobill
    Waffalobill Dee7777

    Posted

    The neurologist will atleast be able to rule out any brain disorders. If he does that he should be able to steer you in the right direction afterwards. Like refer you to a good neurotologist.
  • lily65668
    lily65668 Dee7777

    Posted

    Hi Dee,

    If the weakness in your hands and face has improved it doesn't sound too sinister. However, don't let them keep you waiting too long for that neurology appointment. If you get any more episodes of weakness that other people can perceive - e.g. uneven smile, weak grip in one hand etc. - you should immediately go to A&E (ER if you're in the States) just to make sure there's nothing going on.

    Do you think you suffer from anxiety? This can create all kinds of dizzy feelings, sometimes quite severe. However, your doctor is right to refer you to a neurologist. Anxiety should only be considered as a diagnosis when all other possible causes have been eliminated.

  • Mesirm
    Mesirm Dee7777

    Posted

    Hi, my sister is experiencing mostly vertigo and a little dizziness, nausea, constipation, pain in neck, left side under her breast (I think it's originating in stomach). To cut to the chase, we are now wondering if it's related to new meds or vitamins (B12) she is taking.  Have you changed or added new meds, herbs or vitamins?  

    Also, the first vertigo episode subsided when she drank a lot of water.   She finally went to doctor; was given some pills for the vertigo but now it's started up again.  She is considering stopping the new meds/vitamins for a time to see if It stops/changes. She is thinking about starting taking one med/vitamin at a time to see I feel she can isolate the culprits.  Hope this helps and you find your pathway to better health. 

  • lily08036
    lily08036 Dee7777

    Posted

    Hi Dee

    I've been dealing with same thing as you. It's been over 5 years now. I've seen so many Dr's; ENTs, I've had several KRIs and bloodwork and all normal. Which is great, you would think. But symptoms are still there. They've gotten more intense in the last 3 years . Everyday all day swaying , fatigue, tired ( as if I didn't sleep night before ) , off balance , pressure in head and ears. My face hurts and head hurts . My head feels heavy..numb . Let's not forget my neck and my shoulders ... in pain everyday all day. My vision... just like you mentioned . Optometrist said my eyes are fine. I'm so over this. It's dibilatating . I'm not the person I once was. It makes me upset . It's so bad sometimes that I get nauseous. I'm still seeing neurologist ... he gave me topamax 25mg for headaches . I don't get headaches as often but they're there.... swaying motion is always there. I look sad... depressed . It's all because of this.

    • victoria78511
      victoria78511 lily08036

      Posted

      Hi lily I was like you i sway when standing on the spot and feel off balance to the left. I've seen 3 brain specialist 2 Ent he told my to stand on the spot with my eyes closed and March on the spot with my arms out straight when I opened my eyes i turned to the left. He said I've got a weak balance system in my ear. I had all the test done on my ears they said it's not my ears whats causing the problem. They give me Vestibular rehabilitation exercises it did help one was to stand on the spot with your feet together with your eyes open count to 40 then with your eyes closed count 40 do the same standing on a cushion twice a day it help me to stop swaying. They said why i have trouble with my balance and swaying because of anxiety. I hope this helps

    • lizzie67
      lizzie67 victoria78511

      Posted

      Hi Victoria

      OMG, I had exactly the same response to that marching on the spot test too!

      I too suffer with anxiety.

      Can you PM me a bit more about your symptoms please?

      Liz xx

    • lily08036
      lily08036 victoria78511

      Posted

      Hi Victoria

      I'm going to try it. I will try anything . My dr put in a referral so I can get those type of exercises but I'm still waiting .... that was over a month ago. Today has been tough....simce this morning . Been feeling that swaying and it has caused me to feel so nauseous .... It's horrible . Driving is horrible. But I will try those exercises thank you .

    • Waffalobill
      Waffalobill lily08036

      Posted

      It's important to do them correctly and not over do it. You can make yourself worse. They are designed to train your brain to deal with the imbalance. If done wrong you will have to untrained and retrain. Will take longer to feel better. Happened to me first time I took them. Therapist was a student and the therapist wasn't watching what he was doing. Made me way worse.

    • victoria78511
      victoria78511 lily08036

      Posted

      Hi lily the exercises will make you feel wores to start with keep up with them what i said too do till you get appointment.if you have heard anything in 2 weeks tell your doctor because they lost my referral
    • victoria78511
      victoria78511 lily08036

      Posted

      Look at a spot on the wall keep looking at the spot still moving your head side to side then up and down count 40 do them 4 times a day.thats one of the exercises they give me
    • lily08036
      lily08036 victoria78511

      Posted

      I did the standing on a pillow today. . That was tough . I'm feeling so down. This feeling hasn't given me a break for a minute . It's so intense . It sometimes feels like my blood pressure is up so I check it and 9 times out of 10 it's fine I do take blood pressure med . My shoulders and neck hurt so much . It's a constant imbalance in my head . Pressure and sickness that I feel . I feel like running to emergency room but I've had so many MRIs MORe and blood work done over these years . I have an appointment for audiologist this week or next week . It feels like I'm clostophobic ..... It's a struggle

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