dizzy when walking

Posted , 7 users are following.

In February I was diagnosed with bppv. Ever since I have been dizzy when walking and standing, execept for this summer when we were away. For some reason I felt fine then. The bppv has returned two times since february. I have seen three different doctors who all say there's nothing physically wrong, except from the bppv. My problem is trusting them smile Could it be that it's "just" psycological dizziness? I have no problems while sitting or lying down. I'm so scared it's something serious. They won't do any scans to my head because there are no symptoms of anything dangerous. Anyone else who have been dizzy like this?

0 likes, 8 replies

8 Replies

  • Posted

    Hi, yes, I'm fine lying and sitting and mostly OK walking, but my symptoms are brought on by open spaces and by turning my head. Crossing the road can be a nightmare as that often combines all three triggers. My diagnosis 4 years ago was migraine associated vertigo. It had improved a lot and I only had rare incidents, but it got worse again 3 months ago. I'm on serc for the dizziness and amitriptyline as migraine prevention, waiting to see ENT again. They did scan my brain and found nothing and I was told it wasn't bppv. There seem to be so many causes of dizziness and vertigo and from reading people's stories on this site, so many never seem to get a diagnosis. It's all very mysterious and frustrating and so horrible to live with. I wish you all the best.
    • Posted

      Hi,

      Does the Serc and Amitriptyline work for you and how long does it take for you to see the results.

      I must say this is getting very depressing reading how long these disorders last for. When (and if) I get better, I will beeline to book a vacation, however, I am terrified of flying on a plane now in case it happens on the plane! 

    • Posted

      It's really difficult to say whether the medication works, or whether things just improve with time. My feeling is that the serc helps a bit especially in the morning. I was quite a bit better after I added the ami. I was 2 and 1/2 years without meds and had very occasional probs. I feel I'm improving but I know I'm avoiding triggers as much as I can. For example, I'm back working out at the gym OK, but I haven't dared to go back to aquafit as the poolside would be an open spaces situation and the exercises involve turning and twisting.
  • Posted

    Hi, yes Ive been dizzy now for three years without a break in October.  However I am OK sitting perfectly still or lying down with my neck supported.  I was told I have silent migraine but my question is, how can it be OK when I lie down but back again when I sit up therefore I think it is SCM injury - google it.  Its a neck issue.  They really should give you a scan to make sure its nothing serious, then they can sit back and try all the thousands of meds for dizziness.  I saw GP and had betahistine, which didnt work.  The endless ENT all who didnt have a clue, then neuro surgeon and finally two neurologists.  MRI and blood tests all came back normal, now waiting for appmt with orthopaedic consultant as I think its connected to my neck. It can be so many things, but they can test for BPPV  as you would need the epley manoevre to move the crystals.  I dont have that.  Demand a scan, you do need to rule stuff out.  Good luck .
  • Posted

    I don't know if I can demand that, I asked for one but since I don't have any other symptoms than dizziness they don't want to do one. I live in Sweden so maybe things are done differently smile My psycologist, doctors and physiotherapist all seem to think it's psycological, or maybe sideeffects from my antidepressive meds. I think they called it phobic dizziness... 
  • Posted

    yes, i have a definite diagnosis for bppv, confirmed during the epley manouvre but i also had periods between bouts of bppv where i felt off balance with visual disturbance, i also had a neck disc problem.  I am now being treated for silent migraines, which i understand could also be caused by my neck problems and was told by the consultant not to get the 2 conditions confused.  BPPV is something that usually happens when you roll over in bed and everything spins.  It would be good to have an MRI done to exlude anything serious and then you would feel more reassured.  ENT usually refer for an MRI to exlude an acoustic neuroma.  Hope this helps.  Best wishes.  Anne.
  • Posted

    I'm with everyone here and I have BPPV - scan came back  normal but if the doctor and physio are worth their salt they would of already tested you for BPPV - it's a certain movement that can force the spins and check which way your eyes are darting!  You need to request a specialist who deals directly with Vertigo ! Not any doctor as its the top 10 most missed  diagnosed conditions in Australia, USA and Britian so it lets throw in Europe as well! 
  • Posted

    I have been diagnosed with BPPV too. Moving my head when lying down does affect mine. Also, when getting up from lying down I get dizzy.

    BPPV is supposed to be easy to get over but I have my doubts.

    after reading people's comments on here I believe that very little money or effort has been put into research of vertigo.

    I use a wheeled walker as I cannot afford to fall.

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