DLA to PIP .....help

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So worried about this change to pip ....anyone been successful....

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  • Posted

    Hi have u applied yet??
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  • Posted

    I was never on DLA but straight on PIP got this for 2 years with Bi polar just waiting for my decision now dreading it they take forever shouldn't have to be like this, did you get it on DLA

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    • Posted

      Did them myself got a text 2 weeks ago saying it gone to the decision makers I haven't been for an assessment though to be honest its only about 7 weeks so that's not that long some people wait 6 months or more

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    • Posted

      Really mags don't worry.. a couple of months ago it came on my fb from the government I read people's comments n it made me really ill so I no where ur coming from.. I got intouch with advocacy after the weekend who told me not to worry at all. Then my hv came round she sees lots of women with mental health problems she said alot of them arnt seeing any help & still got pip ..so try & put it at the back of your mind .. get intouch with your cpn tell her it's making you really ill & anxious .. I'm sure she will be able to do your forms & right a note with it ..

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    • Posted

      its awful trying to switch off ...only did the phone call yesterday for the forms ....depressive ..anxiety ..........made an oppointment with my CPN for the 3rd .........Advocacy .....i,ve googled it but unsure what you mean and who .............thanks for your support to a total stranger ........
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    • Posted

      Yer I no what u mean it was the longest weekend of my life with ni sleep worrying waiting for Monday morning to ring them.. u don't need to worry about advocacy with having a cpn. There just like cit advice people bt it makes a big difference having someone professional filling the forms . No problem I'm glad to help..I no how much its unsettling. . My dla runs my car if I didn't get it then I'd never leave the house. .. let me no how u get on ??

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    • Posted

      Thanks ... i understand the never leaving the house ............if i could live my life indoors i would .................do you work ....personal, but i feel i,m the only person in the world suffering ...glad i came across this site ...helping me so much ......
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    • Posted

      Iv worked all my life .. say the past 1 5yrs in the same place ..just a local take away .. when I'm ill they have an understanding. .but it changed hands &;new staff came in.. young 1s are very lazy want to be your favourite ect.. I'm not like that I go to work for peace of mind to stop me becoming a full time recluse. . Well I got sacked for bullying over a year ago.. couldn't believe it . I went down hill from there & dnt leave the house now unless I really have too ..& then il cancel appointments because I feel I cnt leave ..

      it does help alot this site..I found it by accident because of how I'll mirtazapine was making me ..

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    • Posted

      Sorry to jump in, just wondered on what happend with your Mirtazapine and what you now take? I tried to come off it but started to feel ill when doing so.... The recluse thing really is a problem when there is nothing to do, there is a really good volunteering site where you get to do what interests you. Its kinda nerve racking getting back to civilisation, but you just sink lower staying in....just seeing if I can find the name of that site...
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    • Posted

      Hi pistal no problem ?? I was on mirt for about 5 months I think 30mg. I got so I'll. My horrible pdr told me to come straight off them which I did.. I just felt really off my face at night around the time I took them ..I also took zopiclone to help me sleep .2 weeks later I went on to venlafaxine. .she wanted me to go on them straight away bt I felt I needed a break after what the mirt did.. my gp was so shocked she did t tell me to taper. So now I'm on 225mg venlafaxine. .many feel it's a wonder drug .iv been on it over 4months & I'm still waiting..I think mirt has done alot of damage stopping me from getting well. I'm so tired I get to sleep around 4-5am every day .. then up early with my boy.. I have zopiclone bt won't take it until all the time ..il have maybe 3-4 days a week without a propa sleep.. I wanted to go on citrolpram but she wouldn't let me.. prob 1 of the more expensive drugs

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    • Posted

      Yeah, I'm on 30mg Mirt, 700mg Pregab, 225mg venla (think you and I are takin the max dose they are licenced to give) and 375mg Quetiapine. I feel I'm taking to much but don't feel to good when they change it, massive lows and shakes. I wish there was just one fantastic pill, or a procedure where they can just scoop out the bad bits of Brain. wink

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    • Posted

      Oh my gosh Yeh me too.. Iv never known people to take so many diff pills since joining this.. my pdr tried to tell me that I shouldn't need a ad with lithium. . I just think money savers all the time .. the older the pdr is .. worse they are. What's pregab?? .Yer I used to get the shakes but only now if I need to take them. How do you find quetiapine with weight gain?? I found that pill good bt the weight was a problem .. so a kind trainee noticed how depressed it made me n changes me to lithium. ??

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    • Posted

      Tried Zopiclone but only enough for 7 days, I was told it stops working if you take it all the time, and its addictive, I if I had my way, I would have a non stop supply of Diazipam, nothing matters if i take enough of that. Have You and Maggs sorted out the claim situation?

       

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    • Posted

      Yrs if u take it all the time I believe so.. Iv been taking it for about 5 months .. Theyv started me on 7.5mg I don't no why.. for the last 2 months iv been on 3.75mg on my request they work just aswel. I get 14tablets a month & make them last ..Iv had insomnia for years on n off.. I think having the pills handy makes me feel safe that I have them..

      Iv never had diazapam.

      I don't need to claim yet ..I got a letter saying in 2 years . So now I'm trying to not spend ..I go through stages of spending and it's bad nearly got a car in hp last week..how I'd pay for it if the dla stopped I dnt no. Thankgod I little to sence ..

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    • Posted

      Retail Therapy, Its crazy how one battle with yourself if you really need to buy it? And then you just buy it so you don't have to think about buying it.......annoying how thing ping pong around your head.

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    • Posted

      It sure is .. people think it's a kind of happiness in your life because you don't have any & once you find true happiness the shopping will stop.. I'm not to sure.. I was so happy when I had my son my shopping went more out of control ????

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    • Posted

      Hi pistal666...i have a none stop supply of diazipam ......don,t understand the meaning of using it low for a lift high for calming effect ......i,m also on quetiapene 500mg at night with 200 mg carbemazipene .....if left alone I sleep 12 hours a night ....great sleep...200mg carbemazipene on a morning ...beginning to think I,m on too much quetipene takes me forever to awake and get out of a depressive state ....my highs are disappearing.. ..DLA...PIP...taking my forms to my CPN to fill in .....
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    • Posted

      Hi Maggs razz I think it's difficult to find the right balance of Drugs. If only the illness followed a strict regime and we could medicate accordingly. But I think thats a long way off. So kinda putting up with it is the best we can hope for now. After going through a long period of lows, you welcome any sort of stability in your mood. But when you have the "Normal" life problems (finance, bills, paperwork) on top of that, thats pilled up through your low period, even the times you feel a bit better are a bit low. It's all a bit pants really......So....what do we do about it? I would love there to be some kind of social group for people like ourselves, the kind of people that would understand if you never turned up on week, or if you seemed a bit off, maybe meeting people that respect how others may feel, whilst going out and having a laughPeople with drug and alcohol problems have their little parties, and so do round people, where can we meet? Who can we have a chat with and share ideas and coping mechanisms with? Not to mention pulling together a little and maybe making eachothers lives a little more fun and manageable. I know we have this wonderful forum, but it's just not the same. Blah blah blah.......Or we could just see what Tomorrow brings.

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