Do I have CFS?

Posted , 4 users are following.

I recently looked into CFS and I want to know if I have it. I'm a 23 year old female. I have extreme fatigue, but I also have mild sleep apnea which was diagnosed in August 2016. I am overweight for my age and height, but I am currently losing weight. I get major brain fog on a daily basis as well as extreme light sensitivity. I feel as if my body is just going through the motions and my mind is on auto pilot. I do have joint pain but I am a dental hygienist and am not sure if the joint pain is because of the same repetitve motion or because of CFS. 

I was reading the CFS could be caused by an illness/viral infection. Last March 2016 I got really sick with gastro, respiratory, chills, diarrhea, and vomiting. Is it possible that this caused sudden CFS? Also, in 2015 and 2016 I got a sore throat probably once a month. 

I also read that certain auto immune disorders are common with CFS. I was diagnosed with Interstital Cystitis in 2012 but it is controlled and I am currently in remission. 

If you have any information that can help me, please let me know. Thanks.

0 likes, 9 replies

9 Replies

  • Posted

    Hi there,

    Yes it is a possibility you could have CFS/me. Have you also been checked for other causes through blood testing ? Such as vitamin D or iron deficiency which can cause similar issues. The medical profession like to out rule everything else first.

    CFS/me can affect people at all ages and backgrounds. There are also three levels: mild ,moderate and severe. It is possible you're closer to the milder end as you are managing to work still or that you're more moderate but struggling on?

    I think your description of brain being on auto pilot and body going through the motions fits the condition well! If it is CFS/me, people do recover but, rest is the key and not pushing too hard. I know of people who work with this condition and spend all their time after work resting. I also know of people who had the condition 10 years and have recovered.

    Hope that helps

    Beverley

    • Posted

      I am going for bloodwork at the end of this week. My bloodwork always comes back normal though. I am just really nervous about this whole thing because I am so young and have so many things I have yet to do. Thanks for your quick reply though Bev. 
    • Posted

      Hi again,

      The blood tests often seem more of a process of elimination as for many the tests come back normal. Are you in the UK? You could ask to be referred to the CFS/me service in your area. They would help not only in deciding if it is CFS/me but, also help in finding ways to best manage the condition for your own symptoms.

      Beverley

    • Posted

      I am in the USA so that would not work. I'm hoping this is all just some other stuff that's going on in my life at the moment. It's just scary because I fit the symtpoms of CFS to a tee. 

    • Posted

      Hi again,

      There are some differences in working out if it's CFS/me in the UK and USA. Think you need to see an infectious diseases specialist or something?

      I know you're finding it scary but, research points towards younger people being more likely to recover well if it is this. If it isn't this and is linked to other things that are going on in your life then hopefully you will find ways to help these.

      Best advice right now is rest when you can whatever it is as that will help your body and mind. Let us know how it goes with the blood tests and what GP says regarding results.

      Beverley

    • Posted

      Thank you for all of your help Beverley! I will definitely let you know how the blood work goes! I appreciate your knowledge and information. Talk soon!
  • Posted

     Hello I had M.E which is not actually CFS as I am told, and which also involves extreme fatigue and notably weakness, you cant stand up much if atall, you could not add up to save your life, you feel as if your brain has ceased to operate, you get pains in your legs particularly as if in the bones unlike usual pains and not joints, you find you often have to go to bed being too weak and tired to do anything else. You cant lock the loo or bathroom door for fear of blacking out which can happen unpredicatably and you really need someone around all the time to keep an eye on you and to do things for you you cant do. Now this was quite severe M.E and it for that time reuned my life, I was helpless. amazingly i went into remission about 13 years ago and though I never have the strength to carry on as I did before it like I cant walk more than say  a couple of miles without having to go to bed to recover.

     What you have could be anxiety based so you need I think to try an anxiety medication to see if you get relief, the docs usually try you one various meds like anti d's to see if they improve or cure it so its a process of elimination.

    I think one of the telling symptoms is the lack of cognitive ability, its more or less wiped out.

    CFS invloves more sheer tiredness and less other symptoms I think.

     M. E. they say seems to often start with a virus and the clue is it doesnt go away yoou dont get better so if you got it from that you wont have improved much if atall after the  illness. your immune system is greatly effected.

    As I said by process of elimination by using anti anxiety and anti depressants should make it clearer as to whether you have CFS. The meds might help a little bit but dont actually make you functional.

    • Posted

      Thank you for your fast reply Gill. I've been taking Lexapro for almost 6 years now as I used to have really bad depression and anxiety. I do get the pains of ME but I believe it's related to my job as I am always doing repetitive motions on a daily basis. 

    • Posted

      Hi gill,

      CFS or ME is a whole different debate ! I happily use CFS/me to term myself while my friend with the same symptoms says they have ME. I sometimes have used a wheel chair I am that unable to walk and have been bed bound and house bound on many occasions. I see the symptoms I have as following the ME association descriptions of symptoms associated with the condition. They also state that trauma can cause ME such as an accident which is what I was hit with-literaly !

      Re anti depressants, my doctor told me they help some people with the condition and suggested them to me but I didn't see this as a solution myself. So they can work if you aren't depressed. I 'm guessing due to the effect they have on serotonin levels?

      It's fantastic that you went into remission 13years ago and I wonder if you can remember anything that triggered your recovery? I ''ve heard of many people who get better from this, not always back to who they were but still a fair way from feeling this unwell. It would be good to hear your story.

      Beverley

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