Do I have COPD?

Posted , 8 users are following.

Hi everyone.  I am new to this site and am hoping you can help me understand a few things.  I am a 43 year old non smoker and I developed a cough in August.  The cough subsided but never fully went away.  Each morning since then I have coughed for 2 hours or so.  My Dr did a simple peak flow test and my numbers came out at 300 out of the predicted 444.  She then sent me for spirometry tests.  These are the results -

FEV1-77.3

FVC - 99.3

VC Max - 91

PEF - 83

MEF 75 - 63.5

MEF50 - 47.4

MEF25 - 40.2

I was then given a reversibility test which only went up 6.5 percent.  From all I have read these numbers clearly state COPD as it needed to go up 12 percent to be classified as asthma.  Despite this, my Dr has not yet classified it as COPD. I should add that I have gone privately to a respiratory doctor who specialises in COPD.  He somehow thinks we can still get the numbers to go up with long term inhalers.  I would love to believe this but all I have read says the reversibility test defines asthma from COPD.   I am so confused and scared about all of this.  He says we can try long term inhalers for a month or do a cat scan.  He tried the long term inhalers initially but they caused major heart palipatations - so bad I went to A and E as I thought I was dying.  Never had them before!! I am reluctant to go try another steroid inhaler and reluctant to have a CT as I am very high risk for breast cancer.  He has sent for an alpha 1 deficiancy test which I get back next week.  Anyway, if you can shed any light on this for me - please do!  Thanks in advance for your help!  Lauren

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  • Posted

    I'm a little confused when I see someone says "my lung function is 66% or 72% etc".  I was SO frightened when I was first diagnosed that I didn't ask for a result of my tests.  I now have a copy of my results.  Under lung volumes it shows:  SVC(LL), IC(L), ERV(L), TGV(L), RV (Pleth)(L), TLC (PLeth)(LL), and RV/TLC(Pleth)(%).  What does all this mean and which number should I be watching?
    • Posted

      I do not understand all the numbers either and I ask my doctor a couple of simple questions.  Have I worsened?  What is my life expectancy?  If 100% is normal, then anything below that steadily becomes abnormal to what ever degree.  When I say that my lungs function at 30%, for me it means that 70% of my lung capacity is no longer usable due to permanent damage.  That is all I want to know.  It has been my life's mission to not dwell on the worst of it because if I do I will become crippled with fear far greater than my lungs have crippled me.  I take the mentality of refusing to die from this.  It will be something else that kills me.  I just stare the disease in the face head on, educate myself about it to the extent that I feel will help me and take all preventative and proactive actions that I can.

      My situation is extreme.  But it does not have to become that way for everyone.

       Dawn US

    • Posted

      Hi I don't know what those figures mean either.   The ones you need to atch out for are your FEV1 (forced expiry volume) which is how much you can blow out in 1 second.  This gives your lung function ie the percentage of say 66% or whatever.

      The second one is your FVC (this is how much your can blow out in total-the long slow one).  x

  • Posted

    Ditto to DawnD!!!!  I was at Level 2 when I was diagnosed; however, I too am facing it head on, doing everything possible and not taking a negative attitude!!  Bless you Dawn!!

     

  • Posted

    Hello Cookie! I have been on a 5 year journey with this. I didn't know what was causing the persistent cough and congestion that started in my lungs 5 yrs ago, but a co-worker thought I had walking pneumonia and said I should see a dr. So, I did...and he prescribed prednisone for 10 days & 2 inhalers, and said that it would clear up, BUT, if the symptoms return, I would have to quit my job, sell my house and MOVE because I was lving in the worst place in the nation for molds and pollen in the air. Well, I didn't fully believe this was possible, but, the symptoms did return. Well, I thought perhaps it was food allergies and stopped eating all kinds of potentially allergic foods. That didn't help (except that I lost 25 lbs)   I tried air purfiers, that ddn't help much either. I was scared to have a chest xray for fear of cancer. But I was getting worse and worse. Could not get off prednisone and ephedrine to breathe. So, after months and months of my own research I found that my symptoms definitely indicated mold/fungus in my lungs. The building where I worked was discovered to have black mold infestation in the walls and ductwork; the barn for my horses is where our hay is stored and I learned that even the cleanest hay has alot of mold spores in it; we disovered our basement had mold..

    Mold/fungi in the lungs is rarely diagnosed in patients presenting with COPD symptoms. It is only very recently that it is being recognized as a very widespread problem. Even when mold hides behind walls, it is able to penetrate through. Spores can find their way through the tiniest openings. We are often unaware it exists in our environment until we start looking for it.

    It is very serious. Some molds release a deadly poison called aflatoxin.

    If there is any suspicion that you may have been exposed to mold, and suspect you may have mold/fungi in your lungs, there is really only one way to kill it...and that is by starving it. Fungi thrive on sugar. So, when you eat sugars and simple carbohydrates which turn to sugar in the body, you are literally feeding the fungi and they continue to thrive and grow and wreak havoc in your lungs.

    After 5 miserable years, when all other therapies failed, and I had lost all quality of life, I finally, in desperation, tried this sugar-elimination therapy diet and removed all sugars and carbs from all  my meals. It took a couple of weeks to start weaning myself off my usual foods, and finding non-sugar substitutes, and it was difficult, but I had to do something or else my life expectancy was only going to be 7-10 years. I'm only 60 and I was scared.

    After the transition/weaning 2 week period, I became more vigilant. (when I would have a temptaion to cheat, I would remember that I would be feeding those nasty fungi in my lungs). After the next 2 weeks I noticed a SIGNIFICANT improvement. I was able to reduce the ephedrine from 5 tablets a day to only 1 in am and ½ in pm. My prednisone is now down to 5mg a day. Over the next several weeks I am planning on completely weaning myself off the prednisone, and then the ephedrine.

    My 2-hour coughing fits occurring 3x a day, are gone. Once in awhile I will cough up a little bit, but nothing like the horrible coughing sessions like before. I have more energy. Definitely breathing better. I wear a mask (3m #1820 procedure mask filters >99% of bacteria and particulates) whenever I suspect I may be in an environment of impure air. We treated our house with Mold Bomb aerosols to kill the mold. Also treated the workplace. But I have to stay out of the barn and away from hay and straw.

    Also try to avoid going out in cold weather unless you wear a protective mask.. Cold air irritates my lungs. I also know I don't get enough sleep, and I must change my sleeping habits. Try to get 7-8 hrs of sleep a night. Best time to sleep is between 10pm and 5am...for some reason the body seems to rest better during these times.

     There are vitamins and herbs that are also helpful and a good naturopathic practitioner can help with that. There's a lot of online info too.

    I recently learned about the buteyko method of breathing which is also very helpful and lung flutes which use sound waves to help clear out the lungs.

    All of these things are new things I have learned about and all are very helpful. I finally have new hope of getting my life back and livng many more long years of life!

    I hope this is helpful to you also!.

    • Posted

      Hi,  That is a very innteresting bit of info.  I have always wondered about mold as my daughter has asthma and I know we did have an issue with mold in our home and had to have one of the walls replaced because of rising damp.  I have always wondered if this has contributed to her asthma and I imagine it has.  

      I come from a family who believe strongly in natural medicine (my sister is an accupuncturist and my mom just seems to have a matural remedy in her books to everything!) Mold was the first thing my sister mentioned.  In addition to this, I live in London the deisel capital of Europe.  My sister has already sent through natural remedies that are good for the lungs If you are into the natural end of things here are a few things she sent through.

      Tai Qi is good for COPD:

      Breathing excercises:

      http://www.copdfoundation.org/What-is-COPD/Living-with-COPD/Breathing-Techniques.aspx

      A few questions,  have you had a spirometry test to know if your FEV1 has been affected?  And were you officially diagnosed with COPD?  Is there a test to determine levels of mold in your body or is it something you have to figure out with trial and error in regards to eating?  This is certainly something I will look into further.  Thank you so much for the information.  For now, I am off on holiday to warm sun down under and will try my hardest not think too much about this.  Easier said than done as I am really worried about it all.  A different environment may just make a difference in things.  

      Many Thanks!!  Lauren

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