Do i have EPI? I cannot go on like this
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Hello, i´m 27 years old and I have been suffering from gut issues for about 8 years now. At first, I just had slight flatulence, then at some point i got blood in my stool. I was then diagnosed with an anal fissure which I fortunately did not have surgically treated. The incontinence would destroy my social life because my flatulence smells really bad. After that I had worms in my stool which could be treated with medication. These probably came from the itching of the anal fissure.... As time went on, the flatulence got worse and worse, every room I'm in smells like rot after a short time. Then at some point I was tested lactose and fructose intolerant which made me very depressed. I started eating mostly chicken and rice and switched to dairy alternatives, but nothing changed. Months later, I was diagnosed with EPI because the Elastase in my stool is low.From then on, I became increasingly depressed and desperate.
I still have the anal fissure and the flatulence today. The Creon enzymes don't help and I don't want to be dependent on them for my whole life anyway. I've had enough and I don't understand why most doctors don't know anything about the disease.
Besides the Creon Enzymes, i tryed other brands but nothing helped. I do a lot of fitness, I'm really very muscular and I've never lost weight, on the contrary, I'm gaining more and more muscle mass. Maybe the muscle growth through protein hides the lack of fat digestion? In addition to measuring the elastase value, I also went to a pancreas Center. The elastase was also low there, but the results of the C13 mixed triglycerol-AT were normal. According to this, the lipase activity is normal. So the elastase test and the C13 test contradict each other.
It seems that no matter what I eat, I get excessive bloating but have no problems with weight. The anal fissure marks the beginning of my illness and makes my digestive problems visible. My stools are too hard and I rely on softeners. The pancreas has also been checked and shows no changes. The report only says that due to the parenchyma structure, an upcoming chronic pancreatitis is possible. I did the examinations two years ago.
There were even times when the symptoms were much less for a short time. Mostly in summer.
Maybe someone has another idea what I can do.
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