Do I have Fybromyalgia? I really hate the way I feel every day!
Posted , 5 users are following.
So...I've thought I've had this for a good 4/5 years. I know it can be brought on with a tragedy, a loss of a loved one and things like that. I went through a really awful time with neighbour harrassment around the time when I feel that my pain and tiredness started. Ive had a bad back ever since I had my daughter 16 years ago but 4/5 years ago, I started to get pains in my leg and thought it was my back pain getting worse. However I often have all the symtoms on the following like every day and find it really difficult to run my business that I do from home. I love my business but I am just so tired and if I didnt have my business I could literally just stay in my bed! It's depressing me so much. I dont know if the illness (that I MIGHT have) is depressing me itself or I am depressed because of it. Can anyone please relate. On this link the ONLY thing I don't have is the numbness and tingling. I'm going to show the link to the doctor and explain but I've already changed my doctor because I just feel they don't know, don't care or think I'm just a hypocondriac. I hate it so much!!!! 
https://patient.info/health/tiredness-fatigue/fibromyalgia#nav-3
0 likes, 7 replies
dave0865 spiritualove
Posted
Hi, I know exactly what you are going through.. I have many if not most of the symptoms of Fibro for many years, have had pain from my toes to the top of my head and all points in between!! Over the years have had xrays, scans, blood tests, invasive procedures, tried Chiropractors, Osteopaths and physio but nothing much is ever found or has worked to that extent.. I did mention Fibro to a Doctor last year and was just looked at blankly followed by the statement well could be but there is no real way to check for it! Ibhaven't felt 100% healthy for well.. can't remember that far back! Have tried many natural ways to feel better over the years from exercise to meditation, don't really want to go the medication route too much, I take mild pain killers when it gets too much but that's it. Currently what makes me feel better is Nordic walking most mornings round my local (very good) Country Park (whilst listening to Classical music), Long salt baths (whilst listening to Classical music!).I used to cycle a fair amount but that tends to leave me feeling pained up and wrecked for a week if I ride more than a couple of miles. I am also self employed from home (don't think I would have been able to hold down a 9-5 job over years due to pain and dizziness..) so when I'm having a particularly bad day I down tools and rest.. My best advice is try to concentrate on doing something positive that you enjoy each day in my case it makes this problem a little bit easier to cope with. Good Luck
pollmadoll64 dave0865
Posted
spiritualove dave0865
Posted
Thank you very much for taking the time to reply Dave. I've also been back and forth to doctors for blood tests and scans and nothing has shown. I got diagnosed with IBS about 4/5 years (funnily enough around the same period i started getting all these pains) I didn't know about fibro back then. Wish I did because when I moved house I wasn't allowed to continue as a patient with that practice anymore. My new health centre I find absolutely hopeless! I am however attending physiotherapy for my chronic back pain so at my next appointment I'm going to ask if she is able to check me over for fibro. I read that there are trigger points and if you have at least 11 you're likely to be diagnosed with it. Have you did this already? I wouldn't mind medication if it actually worked. My friend gives me his dad's strong pain killers. They take the edge of but absolutely nothing takes the pain away completely. For my back pain I was always reliant on ibuprofen and Paracetamol and it would take the pain away completely. Now nothing really does much for my back or neck, legs, shoulders, arms....everything! And I'm just not the same person I used to be. I'm so withdrawn. As much as I love my business and like yourself I've said to family and friends if I worked for someone I would have been sacked by now! But I'm also isolated because of my business. I want to start the gym with my friend but don't know how I can do that when I feel like this every day! 😔
spiritualove pollmadoll64
Posted
denise_97435 spiritualove
Posted
Hi 👋
Yes I can relate. I have a severe case of fibromyalgia pain all over severe fatigued just to move is very painful. I’ve been to four rheumatologists and they all confirmed it’s fb. When I got to the fourth one he looked at me said “what do you want me to do for you?” I said get rid of this pain. Then he looked at me and said I won’t ever be able to get rid of your pain but I can try to make you as comfortable as I can. By the time I retire I hoped to have you comfortable . Then he said studies show that if you’ve had it more than six months you have it for life. I’ve had this for years now that I know I’m still trying to wrap my head around it. Because it effects my daily life. But keep coming here because we unfortunately know how you feel. Big hugs 🤗 too you . Stay encouraged.
spiritualove denise_97435
Posted
Hi Denise, thank you very much for your reply 😊 That's really good that people are taking you seriously and really trying to help you the best they can. Like dave when I mention fibro to doctors they just give you that blank stare exactly how dave put it. I just feel there's no point in even going. I used to have a lot of faith in doctors until I moved house and had to register with this so-called health centre! Did your doctor refer you to rheumatologists or did you have physiotherapy or anything like that? Also have you ever been assessed for the trigger points? I'm really trying to think of a way they can actually test me to prove I'm not imagining this and something definitely isn't right. The thing that annoys me the most is that even when I've had plenty of rest I still don't feel any better for it...just doesn't make ANY sense! 😔
denise_97435 spiritualove
Posted
My primary care doctor was the one who referred me. When she told me I had it I wanted a second opinion so was referred to a different rheumatologist and he said the same thing. Didn’t like he answer (in denial) when to two more doctors and was told the same thing. I’ve been to physical therapy and acupuncture and had trigger point injections (very painful) injections in my back and many different kinds of meds. All to try to relieve my pain. And fatigued