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Ive had two different blood tests and two different times that has made me come to believe that I am most definitely suffering from graves. before I get started let me give you a little background on my health crisis.
since around the age of 7 (24 now Male) I have always suffered from weight loss, heat intolerance, muscle wasting, spider veins, and general fatigue, insomnia and restlessness. anxiety depression, memory loss.
After finding out that my TSH was at the normal range of 1.00 (0.5- 4.5) I insisted to have a MRI. (these tests happened over the past couple of years)
After the MRI my thyroid results came back with: “ both glands are enlarged with several nodules and cysts, being that there is a normal TSH level no action is required”
I wasn’t happy with this so I went and saw a endo... the start of my journey...
When meeting her she pointed out the unusual part that my blood tests results consistently showed low platelets, low white blood cells. so she did decide to run a RAI uptake test.
WHAT A MISTAKE I MADE....
Up until five days before the test I was self medicating with iodine which at the time I did not know was suppressing my thyroid and could have a effect on the result of my test. After speaking with my endo on the phone I immediately discontinued and the ladys at the hospital were notified of the fact that I had been taking iodine.
THE RESULTS. said something along the lines of
“ Patient Mikal LONGOBARDI, has show a high uptake scan of 3.5 maximum 4.00 especially with the fact of recent oral ingestion of iodine”
This is were I stuffed up.. If I had never taken iodine I would have been certain that my uptake scan results would have been even higher and that a graves disease would have been diagnosed. unfortunatley my endo left me to continue my path of severe health issues with nothing but “ maybe go see a haematologist”
recently I have been taking iodine, and feeling so much better, I got some colour to my face I was gaining weight and people were commenting that I didn’t look so sick, so I went to the doctors and asked for a blood test result on the 26/08/17 and this is what iodine has done to my thyroid panels.
TSH 4.81(.0.5-4.5) T4 17.2. (11.0 -19.0) T3 5.3. normal range ( 3.2-6.4)
I was a little concerned about my TSH but I was feeling so much better that I thought hey ill just continue what im doing but maybe take less iodine? (and with such a suppressed thyroid how was my ft3 and ft4 still on the higher end)
Well this is were it gets interesting....
After taking less iodine my symptoms started coming back...
My TSH has slowly dropped down to 2.92 but my ft3 and ft4 have gone up
FT3 5.8 )(3.2-6.4) and ft4 17.9 ( 11.0 -19.00) my anxiety and insomnia are returning!!!!
so ive concluded that if I discontinued taking iodine all together that my TSH will drop back down to possibly 1 again? and that most likely my FT3 & FT4 will be too high???
CAN SOMEONE PLEASE TELL ME IM NOT CRAZY
I NEED SOMEONE SERIOUS HELP I FEEL AS THOUGH IM DYING.
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