Do I have hypothyroidism? I need advice

Posted , 4 users are following.

I have been "sick" for 6 years now. I say "sick" because I have been undiagnosed. I have seen 11 different specialist, 4 PCP and multiple ER visits in the past 6 years. I have had so much bloodwork done and all kinds of scans and test run on me. And still I have no diagnoses. I also suffer from hypoglycemia and I have to constantly check my blood sugar. If I don't constantly eat to keep my sugar up I will pass out. As far as thyroid testing I have had a ultrasound of my thyroid. (Normal). Thyroid labs in have had done are TSH, T4 free, T4, T3, thyroid peroxidase antibody, thyroglobulin antibody, triiodothyronine free.

I'm just looking for opinions from people cause it seems I have read and researched all I can already.


2012 2.38

2015. 3.70

2016. 1.800

2017. 1.420

2017. 2.180

2017. 6.420

2018. 4.130

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9 Replies

  • Posted

    Camille, I can't help with the thyroid issue but I'd like to suggest you see if you can get your hypoglycemia under control.  Start with NO gluten and no sugar and try eating fried chicken livers when you are really shaky.  i don't care for chicken livers but discovered that I got so much better quickly eating them that I'm ok with it.  After I got it under control I stopped eating them... but gluten in any form turns to sugar sooooo quickly that it will quickly screw up your blood sugar.  Going to a very low carb diet helps.  Once you get in better shape you can modify it slightly.  

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    • Posted

      Camille, in 2017 and 2018 your TSH was high, indicating you were hypothyroid. I have Hashimoto, which means I vascilate between hypo and hyper. My Endocrinologist recommends my TSH be in the 1.50 range.  I would recommend you see an Endocrinologist. It may take several months to get an appointment. Don’t be shy about shopping for a good Endocrinologist. If you don’t feel they’re working with you, find one who will. Research patient reviews of doctors on the Internet. Best of luck! 
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  • Posted

    Hi camille,

    What was your lab results of the antibody test and the and the results of the other testing?

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    • Posted

      T4 free - 1.19, 1.19, 1.17

      T4. - 7.5, 6.8, 7.5

      T3. - 133, 133, 174

      Thyroglobulin antibody <1.0

      Thyroid peroxidase antibody. <28.0

      (High)Triiodothyronine free. 4.7. Range 2.0-4.4

      Basically all but 1 came back normal. And with it being 3 points over range the doctor didn't think it was a big deal.

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  • Posted

    Hi camile,

    What are your symptoms you are experiencing?

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    • Posted

      Chronic fatigue and weakness

      Hair loss

      Brain fog

      Body aches (upper leg muscle soreness)


      Dizziness is really bad

      Feeling like the floor is moving while I'm standing still

      Feeling of going to pass out


      Weight loss


      Anxiety really bad

      Memory loss

      Poor concentration

      Can not do physical work

      Sensitive to hot and cold


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    • Posted

      I get the dizzy spells alot. Not sure which one of the problems is causing it. If it the anxiety or the thyroid or my calcium problem. It's really hard when alot of your symptoms can mix with any one of those things. If you have antibodies against your thyroid then you will get swings from hypo to hyper. Its burst of hormone that flood your system from the thyroid getting damage. It would be probably a good start for you to focus on a good inflammation diet. It is good all around for your whole body. I was on it for a bit and felt great but went back to eating normally and now feel bad again so I am about to go in it again as well. The t3 that is high means your body is converting alot of your t4. Usually an indicator of hyperthyroid. However tsh is not indicative of that. I would have them do a repeat of all the complete panels and see where your at and then if they are off and the dr refuses to address it then find a different doctor. One that will actually listen to the concerns and try to figure out what is going on.

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  • Posted

    sounds a lot like fibromyalgia WITH PERHAPS OTHER COMPLICATIONS.
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    • Posted

      I have been to a rheumatologist in the past. They did testing for lupus but all testing came back normal. They didn't think I needed to come back for more testing. I had a testing done for lyme disease which came back positive. I went to see a infectious disease specialist and they did a retest and it also came back positive. After that the doctor said it was a false positive and that I did not have lyme. And if I wanted another opinion then i could go see someone else

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