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Do i have ms? Doctors all dismiss me ;(

Posted , 4 users are following.

tina28767
tina28767

It's been since 2011. Dizzy headaches unbalanced tired feel uneasy tummy issues spine issues joint pain neck pain numbness all over that radiates. Blood test show nothing. Mri was normal. I just want to feel good again every year I'm worse. I'm starting to feel like I'm nuts.

Neurologist & RA doc I had were so dismissive & did not want to find answers. I need answers...can anyone relate? Give info?

0 likes, 5 replies

5 Replies

  • amy71414
    amy71414 tina28767

    Posted

    Hey ! maybe its a mix of other issues I'm not a doctor but your symptoms sound very similar to iron deficiancy. i also have had a few somach issues myself and untill i get my tests done next month i have decided to do a gluten free diet and see if that helps and it has for me although i still need to get the other tests done for peace of mind! i hope all goes well for you ! 

  • marilee43089
    marilee43089 tina28767

    Posted

    I'm waiting to hear results from my recent MRI.  I suspect, like yours, mine won't show anything.  I have suspected MS for a while, and now I'm at the point where I am accepting I have it, whether tests prove it or not. 

    Here's the thing Tina (or anyone else reading)...if we have MS what are they going to do for us anything?  Nothing, but prescribe drugs to hopefully prevent it from

    getting worse.  It's not like there is anything that is going to make us feel good

    again.  I know this is negative thinking, but that's just me. 

    Have you all read the side effects of the MS drugs.  No way am I taking any of

    those.  I'd rather be in a wheelchair.

    • amy71414
      amy71414 marilee43089

      Posted

      Hey so last year the doctors also thought i had MS as my mum has it although my MRI was clear its just that i ended up getting so weak i could barely move let alone walk i was in hospital for a week and they sent me to a neurologist and i also have epilepsy and i swapped my epilepsy medication and i got better so thats what they put it down to. it was a really horrible thing to not be able to walk or move i felt like i was paralyzed. it deffinately made me realise that i took advantage of being able to walk and has now made me want to be more healthy and exercise more and eat healthy. i wish you both well and hope you all get some answers soon !
    • marilee43089
      marilee43089 amy71414

      Posted

      Amy, I understand what you're saying.  The old saying "we don't miss our water till the well runs dry".   

      I read with interest about all these clear MRI's.  I know they aren't perfect, but I have spent the last few months reading, and what I've found claim that they are around 95% able to see the lesions that are associated with MS.  It's just that the criteria (McDonald?) the doctors use to give a definite diagnosis has to come from more than just the MRI.  I would think that if someone is having severe symptoms that pointed to MS, surely the MRI on the brain/spine should show up something.  The early minor symtoms (like I have) might be more difficult.

      If anyone goes on to youtube, there are many many videos of people with MS documenting their journey.  Most of their early symptoms were very minor and shugged off.  Often years past before they got new symptoms.

      Regarding Tina's symptoms, I'm puzzled by the 'numbness that radiates all over'.  That makes no sense to me.  

    • amy71414
      amy71414 marilee43089

      Posted

      yer so the doctors said that with the severe symptoms that if it was MS that they should be able to see lesions by now. It took at least a year before my mum was diagnosed apparently you have to have lesions in your brain and spine and have multiple episode hense the name Multiple Sclerosis. Neurology is such an advanced part of the body and most neurologists arent as well educated and thats why its so hard to find a good one. There are so many different diseases and issues that cause so many different symptoms the list is endless although the side effects of the Epilim i was taking lists all of them along with like another 10 pages of side effects haha gotta love having epilepsy! i was taking epilim for 10yrs and then i got glandular fever for the second time which apparently is rare and they think that maybe the virus had compromised it or something like that anyway the list of side effects of those drugs is insanely long and now i have swapped to Lamictal which has a page less of side effects haha and is the best one to be on if i want to have children so in a way im glad i could change as epilim literally says on the list that it would outweigh the positives of having a child! which is crazy so in a way it was a good out come. although i have had some issues with it lately i thought i was going to have a fit the other day but i didnt which was good but its definately really scary! 
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