Do I have Peripheral Neuropathy?
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Long story short ... Cancer S3 (H&N), Platinum based CetuxaMAB used to treat alongside aggressive radiotherapy in 2014. Straight after the treatment ended developed serious short term memory and confusion issues, along with other smaller issues - a few months later diagnosed MDD & GAD, then 'Mild Cognitive Impairment - not mild at all!!!' later changed to unspecified dementia. Now they are removing the 'unspecified dementia' diagnoses completely and saying its just mental health!!
My abilities range throughout the day I have 'drops' (happens frequently throughout the day and I just try and sleep it off) in cognitive function which means I can at times function somewhat normally for a few hours a day, then be a complete zombie at others. I cannot remember short term stuff at all, (like what day it is, what happened yesterday or what the last sentence I just read said!)
I believe its also important that when my mind drops my (right side only) hand and foot go cold, literally a drop by a good 5-10 degrees - If I measure the surface temp in the same place on both my feet during a drop the left is 30.5 C, the right is 22.5 C!
I have been passed from pillar to post, am constantly being assessed and made to feel like im making it up, judged and attacked from all sides. The drug used during chemo was Cetuxamab one of the side effects is peripheral neuropathy. Does this sound like it could be what I have??? If so how is it diagnosed! I've read online that 60% of cases are reversible and the other 40% were permanent (its been the same now for over 5 years without any signs of getting better or worse! all MRI's come out normal. I'm at a complete loss and the stress is just making my condition far worse!
PLEASE, PLEASE help!!!!
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